Do: Do include seeing an interventional pain doctor and having pain management procedures for relief.
Answered 4/13/2013
5.2k views
Take: Take your pain management doctor with you. Don't leave them behind.
Answered 4/13/2013
5.2k views
Splanchnic: Splanchnic care "blocks" help relieve pain from liver mets, decrease med needs, and helps improve bm.
Answered 4/13/2013
5.2k views
Palliative: Palliative care transition is to move from a "cure" focus to a "comfort" focus.
Answered 5/19/2014
5.2k views
Palliative: Palliative care doesn't mean giving up. It means finding the best quality of life that's possible.
Answered 9/29/2016
5.2k views
Discuss: Discuss with your significant other and write down your end of life wishes. Its easier when the day comes.
Answered 12/28/2014
5.2k views
Palliative: Palliative care is not hospice care. Make sure you understand the difference.
Answered 4/22/2013
5.2k views
It's: It's not giving up treatment. It's just changing the goal to making you feel the best you can!
Answered 4/23/2013
5.2k views
Remember: Remember not to lose hope! hope to feel better and happier without the side effects of treatment.
Answered 5/5/2014
5.2k views
Pain: Pain control and comfort are the most important things you can do for your loved one at end of life.
Answered 4/29/2013
5.2k views
Do: Do not be tempted to use tube feeding as intake declines. Allow natural death with comfort.
Answered 5/19/2013
5.1k views
PCP'S: Pcp's should be aware of the hospice option and when to recommend. But a dr referral is not required.
Answered 5/19/2013
5.1k views
Long-acting: Long-acting pain meds are the standard for treatment of chronic pain, such as methadone.
Answered 5/19/2013
5.1k views
Consider: Consider hospice. It is a wonderful specialty of palliative care.
Answered 5/21/2013
5.1k views
Be: Be supporrtive, not directive. View the patient's life rather than your potential loss. Be caring.
Answered 5/29/2013
5.1k views
Palliative: Palliative care is person-centered care with a goal of maximizing a patient's quality of life.
Answered 5/29/2013
5.1k views
A: A patient is always to be cared for and palliative care is not the end of life soon!
Answered 5/29/2013
5.1k views
Spiritual: Spiritual or medical, palliative care means that the whole team takes care of you.
Answered 5/29/2013
5.1k views
Talk: Talk to your family doctor and make sure every one in the family is on the same page first.
Answered 11/26/2013
5.1k views
It: It is too harsh to say, "do no resuscitate!" instead, say, "allow natural death." this eases minds.
Answered 5/29/2013
5.1k views
Most: Most hospitals now have palliative care teams. They are an excellent resource.
Answered 9/28/2016
5.1k views
Once: Once this decision is made, seek the services of a hospice. They are most helpful.
Answered 5/30/2013
5.1k views
Don't: Don't try to do all the care yourself. Get help from family, close friends & hospice.
Answered 5/30/2013
5.1k views
Realize: Realize that palliative care is not about giving up. It's embracing life for what time is left.
Answered 6/3/2013
5.1k views
Myth:: Palliative care does not mean my loved one will die in days. Many can have months of family time.
Answered 12/30/2014
5.1k views
A: A common myth about palliative care is that everyone is basically giving up. On the contrary!
Answered 9/23/2013
5.1k views
Palliative: Palliative care is a consensus decision that the patient and family agree is the best solution.
Answered 12/4/2013
5.1k views
This: This is tough stuff without professional input. Share concerns & ask your doctor for advice please.
Answered 6/12/2013
5.1k views
Don't: Don't think you have to be dying to get it do learn about it in time to avoid unnecessary distress.
Answered 6/12/2013
5.1k views
People: People in palliative care can even receive hip replacement surgery to improve quality of life!
Answered 6/12/2013
5.1k views
Palliative: Palliative care is a difficult step. Education and communication is key. And talk about concerns.
Answered 9/29/2016
5.1k views
Honesty: Never take away hope, but discuss realistic expectations.
Answered 12/3/2013
5.1k views
Caregiver: Caregiver burnout occurs---do not hesitate to use hospice services if offered.
Answered 9/11/2014
5k views
Always: Always involve your family, friends, social worker, church, and primary care doctor.
Answered 12/3/2013
5k views
Morphine: Morphine and Methadone work very well for long-acting pain control.
Answered 2/12/2015
5k views
Do: Do encourage art therapy, music, and travel to parks to help keep the mind active.
Answered 12/3/2013
5k views
There: There is a big difference between prolonging death and prolonging life.
Answered 1/9/2015
5k views
Focus: Focus on the things that are important for the person, especially those that make them comfortable.
Answered 6/27/2013
5k views
Opting: Opting for palliative care is not giving up! it is about refocusing on different goals.
Answered 9/29/2013
5k views
Don't: Don't be afraid to discuss end-of-life wishes with your loved one.
Answered 7/11/2013
5k views
Improves: Improves quality of life for patients & the family in chronic illnesses like congest. Heart failure.
Answered 7/11/2013
5k views
Avoid: Avoid "poly pharmacy", and keep the goal of making the person comfortable.
Answered 9/29/2016
5k views
When: When discussing palliative care, never take hope away; the will to live supersedes the living will.
Answered 12/29/2013
5k views
Assure: Assure everyone that active treatment is not ruled out for other conditions. It is not hospice.
Answered 11/26/2013
5k views
For: For nausea and GI discomfort, applying heat to the belly may be comforting without pills.
Answered 6/10/2014
5k views
Palliative: Palliative care is not giving up. It is the alleviation of suffering in a terminally ill patient.
Answered 12/9/2013
5k views
Do:: Do: discuss this early with your loved ones. Dont: enforce your wishes onto someone else.
Answered 5/28/2016
5k views
Always: Always respect the wishes of the patient.
Answered 8/5/2013
5k views
Open: Open communication is a must - the patient needs to make their wishes clear and be heard by everyone.
Answered 8/7/2013
5k views
There: There are many options - openly discuss the ones which appeal to the patient. Pain will be managed.
Answered 8/7/2013
5k views
Do: Do involve a pain management physician in your care.
Answered 5/28/2016
5k views
Seek: Seek a physician who is trained in geriatric medicine because they commonly treat palliative care.
Answered 8/14/2013
5k views
Change: Change your frame of mind - ask not "what will cure me", but rather "what will make me feel good".
Answered 8/14/2013
5k views
Palliative: Palliative care is for the patient and the family; include all members in discussion.
Answered 8/11/2013
5k views
Do: Do not hold back on pain medication. If needed, consult a reputable pain clinic.
Answered 8/9/2013
5k views
A: A gentle electric fan blowing on the face can help with shortness of breath when nothing else will.
Answered 9/28/2016
5k views
Be: Be sure to share your worst fears, so your doctor can help. Is it dying alone? In pain? Other fears?
Answered 8/25/2013
5k views
Hospice: Hospice is a good option for people seeking to be kept comfortable in certain late stage diseases.
Answered 8/17/2013
4.9k views
Get: Get consult from a palliative care specialist. Get your family involved in the decision.
Answered 12/29/2013
4.9k views
If: If person still mobile, spend quality time in gardens or parks. Being with plants and nature helps.
Answered 8/14/2014
4.9k views
"When: "when all other means of communication fail, try words." anonymous.
Answered 9/28/2016
4.9k views
Help: Help the patient with access to fulfilling religious his religious needs, a frequent concern.
Answered 9/7/2014
4.9k views
Remember: Remember that family members often struggle more with palliative care than the patient does.
Answered 9/9/2014
4.9k views
Range: Range of motion exercises can help relieve back pain caused by lying in bed.
Answered 9/9/2014
4.9k views
Involve: Involve your pastor, priest, chaplain, rabbi, elders, or imam as supportive resources !
Answered 12/29/2013
4.9k views
Don't: Don't shy away from it. Palliative care can usually offer many choices to improve a difficult time.
Answered 11/18/2014
4.9k views
Involve: Involve palliative care early before illness to set your own goals. Bring family to hear.
Answered 12/31/2013
4.9k views
Don't: Don't nessecarilly expect miracles, but look at the angels in the loving faces of all around you.
Answered 9/3/2013
4.9k views
In: In palliative care, the treatment goal changes from treating the disease to comfort care.
Answered 12/10/2014
4.9k views
Pain: Pain management, sleep management , physical therapy are some of them.
Answered 1/4/2015
4.9k views
Palliative: Palliative care is not just for dying patients.
Answered 9/29/2016
4.9k views
A: A difficult but an important decision that allows quality time to be spent rather than in hospital.
Answered 3/7/2015
4.9k views
Do: Do address palliatrive options early before becoming frustrated or without other options.
Answered 9/7/2013
4.9k views
Just: Just start the conversation. You will find everyone has been thinking along the same lines.
Answered 9/6/2013
4.9k views
Focus: Focus on the quality of life and not on the disease(s) that are ending it.
Answered 4/3/2016
4.9k views
Some: Some believe this means giving up. No, you are respecting yourself and the natural order of life.
Answered 3/17/2015
4.9k views
Palliative: Palliative care is great when end of life comes. Makes it painless and graceful. Helps family too.
Answered 4/7/2015
4.9k views
Explain: Explain that it is not prematurely ending life but letting nature take its course.
Answered 4/4/2015
4.9k views
Do: Do ask as many questions as you want and dot leave any in asked.
Answered 4/7/2015
4.9k views
Always: Always make palliative care a team approach that include patient, family, caregivers and providers.
Answered 9/9/2013
4.9k views
Make: Make sure to have a frank, open discussion regarding concerns, and know its not giving up!
Answered 9/9/2013
4.9k views
Do: Do not assume palliative care is giving up. Do assume it can improve quality of life.
Answered 9/9/2013
4.9k views
Many: Many people feel it is giving up or no treatment. Instead, the treatment focuses on quality of life.
Answered 9/9/2013
4.9k views
Palliative: Palliative care has become an important adjunct to care, little don'ts and many do so use.
Answered 4/30/2015
4.9k views
Palliative: Palliative care can be liberating for both the patient and his/her family.
Answered 12/31/2013
4.9k views
People: People may wrongly think that palliative care implies no care at all or being left to die.
Answered 9/28/2016
4.9k views
Make: Make sure to control pain without blunting senses so you can most enjoy your precious moments.
Answered 12/29/2013
4.9k views
Palliative: Palliative care does not always mean withdrawal of support. It can be initiated soon after diagnosis.
Answered 6/8/2015
4.9k views
Palliative: Palliative care dose not mean no care, but better care and preparation for the final exit.
Answered 9/19/2013
4.9k views
Palliative: Palliative care is about being in control of ones life, humor and empathy with a patient are crucial.
Answered 5/24/2015
4.9k views
Keep: Keep open communication with your healthcare team.
Answered 5/27/2015
4.9k views
Be: Be specific about symptoms - "pain" can mean a lot of things - track what it feels like, where, when.
Answered 6/4/2015
4.9k views
Remember: Remember that palliative care is not a withdrawal of care, just a change in the goals.
Answered 5/8/2016
4.9k views
Psychotherapy,: Psychotherapy, visiting animals, religious services are often underutilized, valuable tools.
Answered 5/23/2016
4.9k views
Palliative: Palliative care is a good thing but sometimes abused to save money in health care! 2nd opinion.
Answered 9/20/2013
4.9k views
Sometimes: Sometimes abused to avoid costs in hospitals. Always ask for a second opinion! seen too often.
Answered 9/20/2013
4.9k views
Do: Do make an advance directive regarding your end of life wishes. Don't think it's too early!
Answered 10/18/2013
4.8k views
Clove: Clove oil can help relieve tooth pain temporarily.
Answered 1/26/2014
4.8k views
If: If this is an end of life palliative care, consult pain control specialist and hospice!
Answered 9/28/2016
4.8k views
Ignore: Palliative care is appropriate for anyone with a serious illness; it can be given w/curative therapy.
Answered 10/31/2013
4.8k views
Ignore: It is important that you understand what this type of care is, what it covers and what is not done.
Answered 11/5/2013
4.8k views
Ignore: Palliative care is the treatment of symptoms and control of things you can.
Answered 11/13/2013
4.7k views
Ignore: Often focused on goal-setting; think about what you want and why.
Answered 11/19/2013
4.7k views
Ignore: Get the most out of it! palliative care is active care, focused on making you feel the best you can.
Answered 12/16/2013
4.7k views
Ignore: Comfort and dignity come first. Relieve suffering and honor respect.
Answered 11/24/2013
4.7k views
Ignore: Do make sure that your wishes are made clear and understood. Don't forget to involve your family.
Answered 12/15/2013
4.7k views
Ignore: Have your docs talk together. Have them estimate longevity and explain potential complications.
Answered 12/15/2013
4.7k views
Ignore: Palliative care does not mean "no" care. Instead it signals more comprehensive and integrated care.
Answered 1/11/2014
4.7k views
Ignore: Be very direct and open about the level of your pain.
Answered 12/21/2013
4.7k views
Ignore: Hospice is amazing.Dont hesitate to consult these angels of mercy to help u thru.
Answered 12/21/2013
4.7k views
Ignore: If you are near the end of your earthly journey, make peace with all those near and dear to you.
Answered 12/25/2013
4.7k views
Ignore: Palliative care is about comfort rather than life saving measures, such as pain meds, feeding, etc.
Answered 10/29/2015
4.6k views
Ignore: Remain upbeat and positive but realize that there is an end in view.
Answered 12/27/2014
4.6k views
Ignore: Pain control is should be main concern not opiod toxicity.
Answered 12/29/2013
4.6k views
Ignore: A good palliative plan involves all family members so they are advocates of patient at right times.
Answered 1/3/2014
4.6k views
Ignore: Avoid last minute "heroics" sought by family who are not aware of persons wishes and plan. Respect.
Answered 1/3/2014
4.6k views
Ignore: Family and friends are important.
Answered 1/5/2014
4.6k views
Ignore: Very serious decision for patient, family, and society. Be sure, be careful, choose well.
Answered 1/15/2014
4.6k views
Ignore: Avoiding unnessary testing and equipement can be very calming; no results=no test anxiety.
Answered 1/23/2014
4.5k views
Ignore: Adjust your expectations. Palliative care is designed to improve comfort toward the end of life.
Answered 9/29/2016
4.5k views
Ignore: Change your focus from cure to comfort. Know that it is not your fault. Take it day by day.
Answered 1/31/2014
4.5k views
Ignore: Palliative care is temporary care! make sure you get your condition permanently treated!
Answered 2/1/2014
4.5k views
Ignore: Compassion and care are gifts. By saying thanks, you are giving back.
Answered 2/2/2014
4.5k views
Ignore: It is important to seek the support of family and friends, and if you are spiritual, to seek too.
Answered 2/4/2014
4.5k views
Ignore: Comfort patient, give sufficient pain medication ; don't withhold for fear of excess drowsiness.
Answered 2/13/2014
4.5k views
Ignore: Seek their counsel. They can help with symptom control, plan your life reduce distress and suffering.
Answered 2/27/2014
4.4k views
Ignore: Palliative care doctors and pain doctors treat pain differently.
Answered 3/1/2014
4.4k views
Ignore: Be open to including PC into your care plan along with curative care. Don't be afraid, it helps.
Answered 6/9/2014
4k views
Ignore: In 1 lung cancer study, patients who saw both an Oncologist and Palliative specialist lived longer.
Answered 6/10/2014
4k views
Ignore: Palliative care helps with difficult to control symptoms from cancer or chemo - pain, nausea, etc.
Answered 9/28/2016
3.9k views
Ignore: Prepare for Palliative Care in advance of the need- discuss your wishes with your friends/family.
Answered 4/8/2015
3k views
Ignore: Do accept a consult when offered, always identify goals of care, understand advanced directives.
Answered 4/24/2015
2.9k views
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