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Fremont, CA
A 36-year-old male asked:

Please share a tip on some do's and don'ts with regard to palliative care.

132 doctor answers140 doctors weighed in
Dr. Ihab Ibrahim
Pain Management 30 years experience
Do: Do include seeing an interventional pain doctor and having pain management procedures for relief.
Dr. Ihab Ibrahim
Pain Management 30 years experience
Take: Take your pain management doctor with you. Don't leave them behind.
Dr. Ihab Ibrahim
Pain Management 30 years experience
Splanchnic: Splanchnic care "blocks" help relieve pain from liver mets, decrease med needs, and helps improve bm.
Dr. David Brouwer
Internal Medicine 31 years experience
Palliative: Palliative care transition is to move from a "cure" focus to a "comfort" focus.
Dr. Linda Gromko
Family Medicine 49 years experience
Palliative: Palliative care doesn't mean giving up. It means finding the best quality of life that's possible.
Dr. Mark Gujer md fasa
Anesthesiology 27 years experience
Discuss: Discuss with your significant other and write down your end of life wishes. Its easier when the day comes.
Dr. Marvin Den
Internal Medicine 46 years experience
Palliative: Palliative care is not hospice care. Make sure you understand the difference.
Dr. Devon Webster
Medical Oncology 23 years experience
It's: It's not giving up treatment. It's just changing the goal to making you feel the best you can!
Dr. Devon Webster
Medical Oncology 23 years experience
Remember: Remember not to lose hope! hope to feel better and happier without the side effects of treatment.
Dr. Lisa Davidson
25 years experience
Pain: Pain control and comfort are the most important things you can do for your loved one at end of life.
Dr. Darrell Herrington
Family Medicine 35 years experience
Do: Do not be tempted to use tube feeding as intake declines. Allow natural death with comfort.
Dr. Darrell Herrington
Family Medicine 35 years experience
PCP'S: Pcp's should be aware of the hospice option and when to recommend. But a dr referral is not required.
Dr. Darrell Herrington
Family Medicine 35 years experience
Long-acting: Long-acting pain meds are the standard for treatment of chronic pain, such as methadone.
Dr. Mitchell Vogel
Ophthalmology 31 years experience
Consider: Consider hospice. It is a wonderful specialty of palliative care.
Dr. Martin Raff
Infectious Disease 57 years experience
Be: Be supporrtive, not directive. View the patient's life rather than your potential loss. Be caring.
Dr. Rupesh Parikh
Medical Oncology 27 years experience
Palliative: Palliative care is person-centered care with a goal of maximizing a patient's quality of life.
Dr. Rupesh Parikh
Medical Oncology 27 years experience
A: A patient is always to be cared for and palliative care is not the end of life soon!
Dr. Rupesh Parikh
Medical Oncology 27 years experience
Spiritual: Spiritual or medical, palliative care means that the whole team takes care of you.
Dr. Rupesh Parikh
Medical Oncology 27 years experience
Talk: Talk to your family doctor and make sure every one in the family is on the same page first.
Dr. William Harris
Family Medicine 34 years experience
It: It is too harsh to say, "do no resuscitate!" instead, say, "allow natural death." this eases minds.
Dr. Mark Safford
Critical Care 36 years experience
Most: Most hospitals now have palliative care teams. They are an excellent resource.
Dr. Tedde Rinker
A Verified Doctoranswered
44 years experience
Once: Once this decision is made, seek the services of a hospice. They are most helpful.
Dr. Tedde Rinker
A Verified Doctoranswered
44 years experience
Don't: Don't try to do all the care yourself. Get help from family, close friends & hospice.
Dr. Christopher Wright
A Verified Doctoranswered
13 years experience
Realize: Realize that palliative care is not about giving up. It's embracing life for what time is left.
Dr. Christopher Wright
A Verified Doctoranswered
13 years experience
Myth:: Palliative care does not mean my loved one will die in days. Many can have months of family time.
Dr. Steven Beer
Neurosurgery 34 years experience
A: A common myth about palliative care is that everyone is basically giving up. On the contrary!
Dr. James Cullington
Plastic Surgery 28 years experience
Palliative: Palliative care is a consensus decision that the patient and family agree is the best solution.
Dr. Charles Cattano
Gastroenterology 40 years experience
This: This is tough stuff without professional input. Share concerns & ask your doctor for advice please.
Dr. Lynne Weixel
Clinical Psychology 37 years experience
Don't: Don't think you have to be dying to get it do learn about it in time to avoid unnecessary distress.
Dr. Lynne Weixel
Clinical Psychology 37 years experience
People: People in palliative care can even receive hip replacement surgery to improve quality of life!
Dr. Mark Moran
Pain Management 20 years experience
Palliative: Palliative care is a difficult step. Education and communication is key. And talk about concerns.
Dr. Daniel Kessler
Family Medicine 16 years experience
Honesty: Never take away hope, but discuss realistic expectations.
Dr. Tracy Lovell
Internal Medicine - rheumatology 22 years experience
Caregiver: Caregiver burnout occurs---do not hesitate to use hospice services if offered.
Dr. Muhammad Emran
Family Medicine 17 years experience
Always: Always involve your family, friends, social worker, church, and primary care doctor.
Dr. Muhammad Emran
Family Medicine 17 years experience
Morphine: Morphine and Methadone work very well for long-acting pain control.
Dr. Muhammad Emran
Family Medicine 17 years experience
Do: Do encourage art therapy, music, and travel to parks to help keep the mind active.
Dr. Kiley Reynolds
Pain Management 27 years experience
There: There is a big difference between prolonging death and prolonging life.
Dr. Marlis Gonzalez fernandez
Physical Medicine and Rehabilitation 14 years experience
Focus: Focus on the things that are important for the person, especially those that make them comfortable.
Dr. Marlis Gonzalez fernandez
Physical Medicine and Rehabilitation 14 years experience
Opting: Opting for palliative care is not giving up! it is about refocusing on different goals.
Dr. Sara Gonzalez
Pediatrics 14 years experience
Don't: Don't be afraid to discuss end-of-life wishes with your loved one.
Dr. Charlene Sojico
Pediatrics 42 years experience
Improves: Improves quality of life for patients & the family in chronic illnesses like congest. Heart failure.
Dr. Mohammed Parvez
Internal Medicine 15 years experience
Avoid: Avoid "poly pharmacy", and keep the goal of making the person comfortable.
Dr. Bahman Omrani
Pain Management 18 years experience
When: When discussing palliative care, never take hope away; the will to live supersedes the living will.
Dr. Lynne Weixel
Clinical Psychology 37 years experience
Assure: Assure everyone that active treatment is not ruled out for other conditions. It is not hospice.
Dr. Edison Wong
Physical and Rehabilitation Medicine 31 years experience
For: For nausea and GI discomfort, applying heat to the belly may be comforting without pills.
Dr. Nathaniel Brooks
Neurosurgery 20 years experience
Palliative: Palliative care is not giving up. It is the alleviation of suffering in a terminally ill patient.
Dr. Daniel Kessler
Family Medicine 16 years experience
Do:: Do: discuss this early with your loved ones. Dont: enforce your wishes onto someone else.
Dr. John Michalski
Orthopedic Surgery 37 years experience
Always: Always respect the wishes of the patient.
Dr. Joseph Accurso
Radiology 30 years experience
Open: Open communication is a must - the patient needs to make their wishes clear and be heard by everyone.
Dr. Joseph Accurso
Radiology 30 years experience
There: There are many options - openly discuss the ones which appeal to the patient. Pain will be managed.
Dr. L. Stoney
Pain Management 39 years experience
Do: Do involve a pain management physician in your care.
Dr. L. Stoney
Pain Management 39 years experience
Seek: Seek a physician who is trained in geriatric medicine because they commonly treat palliative care.
Dr. Holly Maes
Pediatrics 37 years experience
Change: Change your frame of mind - ask not "what will cure me", but rather "what will make me feel good".
Dr. David Brouwer
Internal Medicine 31 years experience
Palliative: Palliative care is for the patient and the family; include all members in discussion.
Dr. Peter Ihle
Orthopedic Surgery 55 years experience
Do: Do not hold back on pain medication. If needed, consult a reputable pain clinic.
Dr. R. Jan Gurley
34 years experience
A: A gentle electric fan blowing on the face can help with shortness of breath when nothing else will.
Dr. R. Jan Gurley
34 years experience
Be: Be sure to share your worst fears, so your doctor can help. Is it dying alone? In pain? Other fears?
Dr. Robert Duhaney
Internal Medicine 17 years experience
Hospice: Hospice is a good option for people seeking to be kept comfortable in certain late stage diseases.
Dr. Pavel Conovalciuc
Family Medicine 24 years experience
Get: Get consult from a palliative care specialist. Get your family involved in the decision.
Dr. Soren Singel
Neurosurgery 30 years experience
If: If person still mobile, spend quality time in gardens or parks. Being with plants and nature helps.
Dr. Charles Cattano
Gastroenterology 40 years experience
"When: "when all other means of communication fail, try words." anonymous.
Dr. Harold Peltan
Ophthalmology 29 years experience
Help: Help the patient with access to fulfilling religious his religious needs, a frequent concern.
Dr. Harold Peltan
Ophthalmology 29 years experience
Remember: Remember that family members often struggle more with palliative care than the patient does.
Dr. Harold Peltan
Ophthalmology 29 years experience
Range: Range of motion exercises can help relieve back pain caused by lying in bed.
Dr. Donald Jacobson
A Verified Doctoranswered
41 years experience
Involve: Involve your pastor, priest, chaplain, rabbi, elders, or imam as supportive resources !
Dr. Neil Ellis
14 years experience
Don't: Don't shy away from it. Palliative care can usually offer many choices to improve a difficult time.
Dr. Randy Stevens
General Surgery 25 years experience
Involve: Involve palliative care early before illness to set your own goals. Bring family to hear.
Dr. Donald Jacobson
A Verified Doctoranswered
41 years experience
Don't: Don't nessecarilly expect miracles, but look at the angels in the loving faces of all around you.
Dr. Ipe Kalathoor
Internal Medicine 18 years experience
In: In palliative care, the treatment goal changes from treating the disease to comfort care.
Dr. Ipe Kalathoor
Internal Medicine 18 years experience
Pain: Pain management, sleep management , physical therapy are some of them.
Dr. Ipe Kalathoor
Internal Medicine 18 years experience
Palliative: Palliative care is not just for dying patients.
Dr. Zahid Niazi
Cosmetic Surgery 40 years experience
A: A difficult but an important decision that allows quality time to be spent rather than in hospital.
Dr. Michelle Zetoony
Sleep Medicine 19 years experience
Do: Do address palliatrive options early before becoming frustrated or without other options.
Dr. Edward Hoffer
Cardiology 53 years experience
Just: Just start the conversation. You will find everyone has been thinking along the same lines.
Dr. Steven Ajluni
Cardiology 36 years experience
Focus: Focus on the quality of life and not on the disease(s) that are ending it.
Dr. Donald Jacobson
A Verified Doctoranswered
41 years experience
Some: Some believe this means giving up. No, you are respecting yourself and the natural order of life.
Dr. Marsha Davis
Internal Medicine 29 years experience
Palliative: Palliative care is great when end of life comes. Makes it painless and graceful. Helps family too.
Dr. Marsha Davis
Internal Medicine 29 years experience
Explain: Explain that it is not prematurely ending life but letting nature take its course.
Dr. Marsha Davis
Internal Medicine 29 years experience
Do: Do ask as many questions as you want and dot leave any in asked.
Dr. Robert Kent
Physical & Rehabilitation Medicine 13 years experience
Always: Always make palliative care a team approach that include patient, family, caregivers and providers.
Dr. Robert Kent
Physical & Rehabilitation Medicine 13 years experience
Make: Make sure to have a frank, open discussion regarding concerns, and know its not giving up!
Dr. Robert Kent
Physical & Rehabilitation Medicine 13 years experience
Do: Do not assume palliative care is giving up. Do assume it can improve quality of life.
Dr. Robert Kent
Physical & Rehabilitation Medicine 13 years experience
Many: Many people feel it is giving up or no treatment. Instead, the treatment focuses on quality of life.
Dr. James Goodrich
Neurosurgery 40 years experience
Palliative: Palliative care has become an important adjunct to care, little don'ts and many do so use.
Dr. Zahid Niazi
Cosmetic Surgery 40 years experience
Palliative: Palliative care can be liberating for both the patient and his/her family.
Dr. Zahid Niazi
Cosmetic Surgery 40 years experience
People: People may wrongly think that palliative care implies no care at all or being left to die.
Dr. Jimmy Bowen
Physical Medicine and Rehabilitation 35 years experience
Make: Make sure to control pain without blunting senses so you can most enjoy your precious moments.
Dr. Lokesh Guglani
Pediatric Pulmonology 22 years experience
Palliative: Palliative care does not always mean withdrawal of support. It can be initiated soon after diagnosis.
Dr. Jovita Anyanwu
Internal Medicine 31 years experience
Palliative: Palliative care dose not mean no care, but better care and preparation for the final exit.
Dr. Jeffrey Buchsbaum
Radiation Oncology 32 years experience
Palliative: Palliative care is about being in control of ones life, humor and empathy with a patient are crucial.
Dr. Parham Gharagozlou
Sleep Medicine 10 years experience
Keep: Keep open communication with your healthcare team.
Dr. Erica Bial
Specializes in Pain Management
Be: Be specific about symptoms - "pain" can mean a lot of things - track what it feels like, where, when.
Dr. Erica Bial
Specializes in Pain Management
Remember: Remember that palliative care is not a withdrawal of care, just a change in the goals.
Dr. Carlos Satulovsky
Psychiatry 29 years experience
Psychotherapy,: Psychotherapy, visiting animals, religious services are often underutilized, valuable tools.
Dr. Klaus d Lessnau
Pulmonary Critical Care 37 years experience
Palliative: Palliative care is a good thing but sometimes abused to save money in health care! 2nd opinion.
Dr. Klaus d Lessnau
Pulmonary Critical Care 37 years experience
Sometimes: Sometimes abused to avoid costs in hospitals. Always ask for a second opinion! seen too often.
Dr. Gena Kluwe
Internal Medicine 25 years experience
Do: Do make an advance directive regarding your end of life wishes. Don't think it's too early!
Dr. Reena Gupta
Dentistry 20 years experience
Clove: Clove oil can help relieve tooth pain temporarily.
Dr. David Kam
ENT and Head and Neck Surgery 37 years experience
If: If this is an end of life palliative care, consult pain control specialist and hospice!
Dr. Heather Curry
Radiation Oncology 31 years experience
Ignore: Palliative care is appropriate for anyone with a serious illness; it can be given w/curative therapy.
Dr. Michael Roberts
Family Medicine 12 years experience
Ignore: It is important that you understand what this type of care is, what it covers and what is not done.
Dr. Douglas Green
A Verified Doctoranswered
25 years experience
Ignore: Palliative care is the treatment of symptoms and control of things you can.
Dr. Lori Wagner
Internal Medicine 28 years experience
Ignore: Often focused on goal-setting; think about what you want and why.
Dr. Devon Webster
Medical Oncology 23 years experience
Ignore: Get the most out of it! palliative care is active care, focused on making you feel the best you can.
Dr. Dennis Clifford
A Verified Doctoranswered
44 years experience
Ignore: Comfort and dignity come first. Relieve suffering and honor respect.
Dr. Dan Fisher
Internal Medicine 28 years experience
Ignore: Do make sure that your wishes are made clear and understood. Don't forget to involve your family.
Dr. Dan Fisher
Internal Medicine 28 years experience
Ignore: Have your docs talk together. Have them estimate longevity and explain potential complications.
Dr. Dan Fisher
Internal Medicine 28 years experience
Ignore: Palliative care does not mean "no" care. Instead it signals more comprehensive and integrated care.
Dr. Bradford Romans
A Verified Doctoranswered
Internal Medicine 38 years experience
Ignore: Be very direct and open about the level of your pain.
Dr. Bradford Romans
A Verified Doctoranswered
Internal Medicine 38 years experience
Ignore: Hospice is amazing.Dont hesitate to consult these angels of mercy to help u thru.
Dr. Holly Maes
Pediatrics 37 years experience
Ignore: If you are near the end of your earthly journey, make peace with all those near and dear to you.
Dr. Eric Tannenbaum
10 years experience
Ignore: Palliative care is about comfort rather than life saving measures, such as pain meds, feeding, etc.
Dr. Harold Fields
Family Medicine 62 years experience
Ignore: Remain upbeat and positive but realize that there is an end in view.
Dr. Jovita Anyanwu
Internal Medicine 31 years experience
Ignore: Pain control is should be main concern not opiod toxicity.
Dr. Tonya Kozminski
Family Medicine 20 years experience
Ignore: A good palliative plan involves all family members so they are advocates of patient at right times.
Dr. Tonya Kozminski
Family Medicine 20 years experience
Ignore: Avoid last minute "heroics" sought by family who are not aware of persons wishes and plan. Respect.
Dr. Steven Busuttil
Surgery - Vascular 34 years experience
Ignore: Family and friends are important.
Dr. Creighton Wright
surgery 57 years experience
Ignore: Very serious decision for patient, family, and society. Be sure, be careful, choose well.
Dr. Michelle Zetoony
Sleep Medicine 19 years experience
Ignore: Avoiding unnessary testing and equipement can be very calming; no results=no test anxiety.
Dr. Craig Carter
Thoracic Surgery 41 years experience
Ignore: Adjust your expectations. Palliative care is designed to improve comfort toward the end of life.
Dr. Hesham Hassaballa
Pulmonary Critical Care 23 years experience
Ignore: Change your focus from cure to comfort. Know that it is not your fault. Take it day by day.
Dr. Fernando Juliao
Dentistry 31 years experience
Ignore: Palliative care is temporary care! make sure you get your condition permanently treated!
Dr. Carol Van der Harst
Physical Medicine and Rehabilitation 36 years experience
Ignore: Compassion and care are gifts. By saying thanks, you are giving back.
Dr. David Liu
Internal Medicine and Pediatrics 20 years experience
Ignore: It is important to seek the support of family and friends, and if you are spiritual, to seek too.
Dr. George Klauber
Specializes in Pediatric Urology
Ignore: Comfort patient, give sufficient pain medication ; don't withhold for fear of excess drowsiness.
Dr. Sewa Legha
Medical Oncology 51 years experience
Ignore: Seek their counsel. They can help with symptom control, plan your life reduce distress and suffering.
Dr. Jason Siefferman
Pain Management 15 years experience
Ignore: Palliative care doctors and pain doctors treat pain differently.
Dr. Jeffrey Mandel
Palliative Care 50 years experience
Ignore: Be open to including PC into your care plan along with curative care. Don't be afraid, it helps.
Dr. Aruna Mani
Internal Medicine - Oncology 20 years experience
Ignore: In 1 lung cancer study, patients who saw both an Oncologist and Palliative specialist lived longer.
Dr. Ilana Newman
Palliative Care 27 years experience
Ignore: Palliative care helps with difficult to control symptoms from cancer or chemo - pain, nausea, etc.
Dr. Carisa Hines
Palliative Care 22 years experience
Ignore: Prepare for Palliative Care in advance of the need- discuss your wishes with your friends/family.
Dr. Silviu Pasniciuc
Internal Medicine 28 years experience
Ignore: Do accept a consult when offered, always identify goals of care, understand advanced directives.

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Last updated Sep 29, 2016
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