A member asked:

Recently diagnosed with pheochromocytoma. 24 hr urine & plasma wkup test reflected 3x amts over norm results. scans showed negative what is next step?

5 doctors weighed in across 2 answers
Dr. Quang Nguyen answered

Specializes in Endocrinology

Workup: Certain drugs can cause falsely elevated (more than 3x normal) metanephrine values. Make sure you were not on any drug from the tca class when the test was done. What imagings had been done? If ct or MRI failed to show a tumor in the abdomen/pelvis region, and you are sure of the diagnosis, 5% of pheo could be around the aortic arch. Next step is a mibg scan or a pet scan. Pls see a specialist.

Answered 6/10/2014

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Rare: Disease that doctors talk about, but never see in person. If imaging studies (ct and mri) are negative, next step is selective venous sampling for these chemicals in order to locate the tumor. But this condition can cause sudden and dangerous increases in your blood pressure and pulse during any procedure or anesthesia, so you should get treatment at a center where they have lots of experience.

Answered 8/14/2014

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