A member asked:

I am a 17 year old female who is 6 feet 2 inches. i have very long fingers and toes an long, thin arms.do i have marfan syndrome? i am worried!

8 doctors weighed in across 4 answers
Dr. Johanna Fricke answered

Specializes in Pediatrics - Developmental and Behavioral

Don't worry, see : Your doctor. Since you have physical therapy for some reason, tell your doctor your medical & family history & have a physical exam. If your doctor thinks it's possible, (s)he'll refer you to a cardiologist to know if you need any medications & to a geneticist. It's difficult & expensive to test for all types of marfan's & other connective tissue disorders because there are so many of them.

Answered 6/14/2015

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Dr. Marybeth Crane answered

Specializes in Podiatry

Probably not: Many people have long fingers, toes and arms but don't have marfan's syndrome. I trip to your primary care physician is in order to address your concerns and screen you for marfan's.

Answered 7/28/2013

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Dr. Jay Park answered

See below: Do you have other physical characteristics such as scoliosis, chest deformity, lens dislocation, hyperflexible joint, etc. If you do so, check with your doctor.

Answered 4/8/2013

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Dr. Fuad Kiblawi answered

Specializes in Pediatric Cardiology

See cardiologis: Certain clinical features r required for the diag. Of Marfan syndrome. Being thin, tall with long fingers, toes and extremities is not enough for the diagnosis but may be an indication for referral to a pediatric cardiologist, pediatric ophthalmologist and geneticist for a much broader evaluation to rule out other abnormalities in the heart, eye and skeletal system and skin consistent w marfan.

Answered 4/2/2016

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