Don't worry, see : Your doctor. Since you have physical therapy for some reason, tell your doctor your medical & family history & have a physical exam. If your doctor thinks it's possible, (s)he'll refer you to a cardiologist to know if you need any medications & to a geneticist. It's difficult & expensive to test for all types of marfan's & other connective tissue disorders because there are so many of them.
Answered 12/10/2013
5.2k views
See ur doc. : Don't worry. Just see your pediatrician or your pediatric cardiologist who follows you after the ASD repair and they will check you for other features of Marfan syndrome and if suspicious will refer you for further testing. Just being tall and thin doesn't mean you have Marfan syndrome.
Answered 2/18/2015
5.2k views
See a Doc: Tall stature is associated with Marfan syndrome. But there are many more issues necessary to make the diagnosis. The bottom line is that i would recommend you bring this up with your cardiologist so they can evaluate you.
Answered 9/28/2016
4.9k views
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