My 10 yo son developed papilladema from growth hormones. he is on diamox (acetazolamide). his spinal tap pressure was 24. after 2 months off the hormones they want to start them up at a lower dose and monitor yes no?

His doctor's advise: His doctors are experts in administrating of the growth hormone, should take that opinion idiopathic intracranial hypertension , that mimic brain tumor is well known untoward effect of gh , his doctors will asses need vs complications and decide your son's need with you ( and fate ) , the burden will be more on you , hope you will choose the best for him, good luck.

Worth a try: With close monitoring especially since they know he is at risk. I would have my child try again. I 'm a mom too.

Possibly: Cat, your son has increased intracranial pressure with papilledema, which can be from gh use. If he is on Diamox (acetazolamide) and there is a real need for growth hormones, you and your doctors may be able to balance the risk/benefit. Watch for severe headaches (increased pressure), and blurred vision--make certain he is seeing a neuro-ophthalmologist or ophthalmologist frequently to make certain he is safe.