I have pulmonary langerhans cell histocytosis and the pain is bad at times is there and meds , to help my pain ?

Rare condition: You have a very rare disorder and need a pulmonologist preferably, someone based in a teaching hospital. Multi-disciplinary specialties are recommended to diagnose and treat your pain correctly. Usually , the nearest university with a medical school and hospital are preferred. Get well.

There are meds: available to address all forms of pain, but you need to address these issues with your present physicians. Particularly problems related to pain management are best managed by doctors who know your present medical history best and can also follow you in the long run to help make changes with any medications.