A member asked:

My baby has classic lissencephaly. when do kids w/ this condition start having respitory issues ? and should i see a pediatric pulmonologist now?

7 doctors weighed in across 2 answers
Dr. Johanna Fricke answered

Specializes in Pediatrics - Developmental and Behavioral

Respiratory issues : May occur at birth. Pediatric pulmonologists diagnose & treat apnea. Pediatric gastroenterologists diagnose & treat reflux to prevent recurrent aspiration pneumonia. Your medical team should include his pediatrician, a geneticist, a feeding specialist (usually an occupational therapist), a pediatric neurologist, a developmental/behavioral pediatrician & early start developmental therapists.

Answered 4/24/2016

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This varies: Clinical symptoms (including respiratory symptoms) of lissencephaly vary based on the degree of brain involvement. A pumonologist should not be necessary unless your baby is experiencing issues; however, you need a good pediatrician with experience caring for children with chronic illness. I would also recommend a swallow study to evaluate for possible aspiration.

Answered 9/21/2014

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