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A member asked:
Need help husband has myopathy willing to go off all meds for reaserch&diagnosis we have kids&one of them already has signs help please?
2 doctors weighed in across 2 answers
Search for help: Last message lists research sites, but with the child having symptoms, sounds very likely of genetic origin, and this needs further assessment, again at a research facility. Include all children in such a study. Hang in there, many facilities have research and insights.
Answered 10/4/2016
5.5k views
Get seen: This could be serious, especially given that kids are possibly involved. Symptoms like these deserve a full evaluation in person by your health care provider. Don't guess, get answers.
Answered 2/18/2013
5.5k views
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