What dr or drs do i see for osler weber rendu syndrome. my ent dr. was not very helpful. thanks.

Osler Weber Rendu: Owr syndrome is an hereditary problem that causes multiple blood vessel growths called telangectasias. These cause bleeding problems, especially frequent nose bleeds. There is usually a family history of hereditary hemorrhagic telangectasias (hht). Most ENT dr.'s have some experience with this problem but may have exposure to only a few patients. Most academic centers will have hht clinics.