What do you suggest if my son recently died of lissencephaly. has anyone else experienced this?

My condolences: The loss of a child is one of the most difficult losses a person can experience because our expectation is that parents are supposed to die before their children. Lissencephaly frequently leads to premature death usually due to infection complications. I would recommend contacting either All Children's Hospital or Suncoast Hospice in Pinellas County. Both have excellent bereavement services.