A member asked:

I am an iih patient. i want to know how can i prevent vission loss ? and why some women with intracranial hypertension have had head operations ?

3 doctors weighed in across 2 answers

Decrease pressure: IIH is a syndrome of increased intracranial pressure (ICP). Often moderate (about 6-10% of body weight) weight loss will resolve IIH. IIH can also be cause by medications (minocycline, vitamin A, steroids) and if present, these should be discontinued. You should have close follow-up with an ophthalmologist experienced in IIH. Head operations are shunts to decrease ICP. Diamox (acetazolamide) also can lower ICP.

Answered 2/23/2017

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Pseudotumor cerebri: Idiopathic intracranial hypertension or Pseudotumor cerebri is raised pressure in the brain that leads to severe headaches and vision loss. Diamox (acetazolamide) and losing weight under a physician supervised program can reduce or eliminate the high pressure in the brain. If headaches cannot be controlled or the patient is losing vision then optic sheath fenestration or shunting of the CSF is necessary.

Answered 2/6/2015

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