Will my child with nf1 be mentally delayed?

Developmental Tests: Neurofibromatosis causes unusual growth of tissue along the nerves, putting pressure on affected nerves and causing nerve damage and loss of function. Associated symptoms include, but are not limited to: visual disturbances, seizures, skin lesions, and bone fractures. Learning differences may be present.

Maybe, maybe not : Neurofibromatosis doesn't necessarily lead to developmental or intellectual delay. It's more of a structural problem. If a neurofibroma is ina critical location it may have neurological consequences. But this is rare. Other neurological problems are more common. Seizures, weakness, paralysis. See a specialist in nf at a children's hospital.

Dr. E is right, plus: Adhd & both language--based & non-verbal learning disabilities occur in 30-65% of people with nf 1. A learning disability means one's iq is in the normal range. Glaucoma & optic gliomas can impair vision. With early intervention 0-3 & early childhood special education services age 3-5 many children with nf 1 are in an inclusion classes with supports by 1st grade. See ctf.Org for more info & tips.

Uncommon: About half of children with NF1 have a learning disability. It is uncommon, however, for a child with NF1 to be mentally retarded.

Probably not: Most of these people are fine. Many have few or no problems. I know a couple of physicans and an engineer who are affected.