A member asked:

Hi does having nf1 mean a shorter life expetancey?

2 doctors weighed in across 2 answers

It depends: Neurofibromatosis 1 can be mild or severe. It does not by itself shorten life expectancy, though if a neurofibrosarcoma develops it is likely to be very serious.

Answered 3/18/2014

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Dr. Gerald Mandell answered

Specializes in Nuclear Medicine

Majority do: Most patients with type 1 neurofibromatosis have mild involvement and live relatively normal lives. Patients with severe involvement can have deformity of bones and large amount of overgrowth of tumors.If severe in infant or young child sometimes can be fatal.

Answered 12/15/2014

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