I have nf1 and i've been experiencing stomach pains for a while now. i feel like i need to vomit, stabbing stomach pains, tingling/nerve-like feeling in my upper thighs. could they be linked?

There is a link: Cases of gastroparesis have been reported, as have cases of GI tumors. Read the link below and call a GI specialist tomorrow. If further symptoms develop or pain lasts more than 4 hours, please go to er.www.ncbi.nlm.nih.gov/pubmed/16022006 neurofibromatosis type-1 ... Patients with nf-1 and GI symptoms are at risk for gastrointestinal neoplasms from which symptomatic patients are likely to experie.

Yes: Patients with nf1 can develop plexiform neurofibromas anywhere along peripheral nerve sheaths including in the abdomen. In addition, there are also gastrointestinal stromal tumors that may develop. Given your symptoms, i would reccomend a ct of the abdomen and pelvis.

Yes: Neurofibromatosis can be associated with many abnormalities including endocrine secreting tumors. They can release neuropeptides such as Epinephrine and serotonin which could be causing your gastrointestinal problems. Go see an internist or endocrinologist.

Maybe: Stomach pain has many etiologies. Nf can affect almost every part of body. Rarely gastrointestinal tract involved. Should see physician for exam and possibly tests to determine cause. Possibilities include gb, stomach, pancreas, gastroesophageal reflux to name few sources of discomfort. Leg pains can commonly be related to nf in certain places.Other causes include spine, disc, and nerve impingement.