I need a bit more insight on centro nuclear myopothy . i heard its extremely rare and my 9 yr old daughter has been diagnosed with this.

Muscle cell disease: Centro nuclear myopathy(cnn) are a group of cogenital myopathies where the cell nuclei are abnormally located in skeletal muscle cells.The nuclei are located in the center of the cell rather than in the periphery of the cell where they belong.They are two forms the x-linked and the autosomal one(more benign.

Centronuclear myopat: Muscle weakness progressively worsens, and some people with this condition require wheelchair assistance in mid- to late adulthood. People with this condition may have weakness in the muscles that control eye movement (ophthalmoplegia) and droopy eyelids (ptosis). Rarely, affected individuals have disturbances in nerve function (neuropathy) or intellectual disability.