Obviously some physician had to diagnose this rare condition so you must have access to a specialist in this disorder. It is treated by periodic removal of blood from your body. My reading states that iron should be avoided unless you're not getting blood removal treatment(phlebotomy). Your specialist educates you on what triggers of attacks to avoid, dietary advice,&medications for nerve pain.
Answered 8/5/2021
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2 doctors weighed in across 2 answers
2 doctors weighed in across 2 answers
3 doctors weighed in across 2 answers
2 doctors weighed in across 2 answers
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