My 2 1/2 yr old daughter has vcfs (22q11.2 deletion syndrome) with this she has an iga deficiency & recurrent bronchitis. i need a helpful website.

22q and you site: Hi lily, the children's hospital of philadelphia (chop) has a great site for parents and health care providers called "22q and you center". http://www.chop.edu/service/22q-and-you-center/home.html. They take online questions, and have links to support groups for kids, teens, and families. I'd also recommend family voices (familyvoices.Org) --a great site with info on advocating for your child.

Other sites: http://www.ncbi.nlm.nih.gov/pmc/articles/pmc2805186/ is a 30-year review by dr. Shprintzen & http://www.Vcfsef.Org/ is the site for the national support group. The chop website is a great resource. I'm just adding these for your information & support, not to overwhelm you. Rearing a child with a neurodevelopmental disorder is a marathon, not a sprint, so please take good care of yourself.