A member asked:

I live in wichita kansas. are there any doctors here that know what to do with me? i have inherited nf from my mother.

4 doctors weighed in across 2 answers

Sure: I'm sure there is. You will probably need a larger facility or academic center. You can start with a pcp and they may be able to refer you to the right specialist in the area.

Answered 12/5/2012

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Dr. Gerald Mandell answered

Specializes in Nuclear Medicine

Support groups: National neurofibromatosis foundation can supply information of local support groups and physicians specializing in treatment in your area. Many neurologists, orthopedists, and geneticists participate in care of patients with nf. Some hospitals supply clinics for treatment of neurofibromatosis.

Answered 12/9/2013

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