A 53-year-old member asked:
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What is it like to have a child with apert syndrome? How can I help support them?

1 doctor answer
Dr. Susumu Inoue
53 years experience in Pediatric Hematology and Oncology
Child with deformity: A child with Apert syndrome has deformed head shape, protruding eyes, high oral arch, dental crowding, triangular upper lip, various types of fusion of fingers, and quite often mental retardation. he head deformity usually requires surgeries to open up more space within the skull, so that the brain can grow. Fused fingers need surgeries too for the child to use the hand adequately.
Answered on Sep 28, 2016
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