I had a brain avm removed 11 years ago & now have encephalomalacia which has seemed to get bigger over the years and causes seizures, is that normal?

Not uncommon: AVM can cause focal seizures and secondarily generalized seizures. Sometimes seizures occur years after surgery. Often seizures are well controlled with a single anticonvulsant

Brain AVM: It is possible for encephalomalacia to get bigger if there is atrophy or abnormal circulation of cerebrospinal fluid (hydrocephalus). Encephalomalacia is the scar tissue left behind after removal of the AVM. Sometimes the scar tissue can cause seizures. If medications fail to control or eliminate the seizures then removal of the scar tissue may reduce the seizures. Discuss with the neurosurgeon.

Unfortunately: The area of excision of the AVM is likely scarred and atrophic, but the totality of the encephalomalacia will neither spread nor cause progressive neurological disability. But the seizures can certainly be better controlled, as we have well over 20 anti-epileptic drugs. If med tolerance an issue, a VNS unit could be implanted.