I was just diagnosed with chronic active ebv. i've had severe symptoms for over 2years. should i be concerned?

Infectious Disease: Chronic active Epstein Barr virus has no well established treatment, and it may be worthwhile requesting a referral to an infectious disease specialist. If you can get seen at a university medical center where research is being performed, all the better.

Unfortunately, yes: Chronic Active EBV or CAEBV is a diagnosis with poor prognosis, esp if acquired beyond middle childhood. Even though you are in USA, for me to assume that the diagnosis was based on reliable tests and in consultation with an infectious disease expert, fFor a serious condition like this, a second op minion is often warranted. Pl discuss potential benefit from bone marrow transplant with your doctor

Yes/NIH study: Chronic active EBV infection is a rare and serious condition. Recent treatments include immunomodulators such as interferon gamma, and pre-clinical studies of bortezomib, and valproic acid are promising. Reduced intensity hematopoetic stem cell transplantation with nondestructive pretreatment is curative. http://clinicaltrials.gov/ct2/show/NCT00032513 Please consider signing up for this study.