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Sunnyvale, CA
A 25-year-old female asked:

I have eds hypermobility no on can help much. i get severe neck and head pain, what can i do for relief? massage helps, holding head takes pressure of

3 doctor answers4 doctors weighed in
Dr. David Lortscher
Dermatology 15 years experience
Ergonomics: It sounds like a tough problem and it sounds like you've already looked into it some. With EDS hypermobility, you should pay extra attention to ergonomics when you're working. For example no staring down at laptops (you should be looking straight ahead so as not to put stress on your neck). Massage is a good idea. Also seeing a physical therapist might help.
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Dr. Qamar Khan
Pain Management 19 years experience
See Pain Specialist: With Ehlers Danlos Syndrome, there can be many issues going on besides the hypermobility issues that the doctor may need to be aware of to determine what is best for you. Recommend seeing a properly trained Musculoskeletal Pain/Spine Specialist that has fellowship training to best address your concerns.
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Bradford Landry
Pediatric Rehabilitation Medicine 14 years experience
Persistence: Guidance from a PT together with a dedicated home exercise program is the best option for management in these cases. There is limited evidence on the most effective type of program but focusing on improving proprioception, dynamic control of joint movement, and aerobic capacity are all probably safe and appropriate. Evaluation by a physiatrist or neurologist may be helpful for neck pain/headaches.
Created for people with ongoing healthcare needs but benefits everyone.
Last updated Aug 6, 2014

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