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Docs say lightheadedness isn't a SX of my idiopathic Intercranial hypertension. But other patients & IIH forums suggest it could be? I'm confused why?
I had a Venogram for suspected IIH (low cerb tonsils, no Im not overweight). My results were very low (0s/-1). They suspected a CSF leak but cant find one. I also have severe scapula pain and muscle mass depletion. What could this be?
What dose of acetezolomide have you seen being beneficial most for IIH? My 500mg doesn't seem enough, SX got better but seem worse?!
Is flying with IIH safe? No longer medicated as papilloedema cleared up. Im going on my first 2 hour flight since diagnosis and Im really scared I wont make the flight?
HX of migraines, and IIH, i have worsening pain in right side of my neck towards the front, very specific location, doesn't feel muscular. Poss DX?
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