A member asked:

Please provide some do's and don'ts on living with lupus.

23 doctors weighed in across 16 answers
Dr. Thomas Namey answered

Specializes in Rheumatology

Ignore: Avoid direct sun. Use sunscreen. Avoid taking bcps or estrogen!

Answered 1/4/2018

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Dr. Ryan Phasouk answered

Specializes in Family Medicine

Ignore: Women with lupus can have healthy pregnancies, but should see a doctor before becoming pregnant.

Answered 11/17/2017

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Ignore: Self takeover is your most important control. Take responsibility and don't relinquish it. Yes no no.

Answered 11/23/2014

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Dr. Robert Lowe answered

Specializes in Pediatric Rheumatology

Don't: Don't ever stop your medications without calling your rheumatologist first--serious flares can occur.

Answered 12/2/2014

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Ignore: This is impossible to answer. It depends on the disease severity and what organs are involved.

Answered 9/29/2016

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Dr. Howard Shapiro answered

Specializes in Internal Medicine - Nephrology & Dialysis

Ignore: Wear long sleeves and a sun screen. Remember, it's not just a skin disease. Get regular checkups.

Answered 6/24/2014

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Ignore: Protect yourself from the sun. Avoid stress, over exertion, dehydration and infections Rest.

Answered 6/27/2014

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Dr. Linda Everett answered

Specializes in Internal Medicine

Ignore: Don't skip your routine physicals to catch complications before it's too late.

Answered 8/4/2014

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Ignore: Do get plenty of rest, take your mess and keep doctor spots. Don't allow sun exposure and use sunscr.

Answered 6/29/2014

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Ignore: Healthy diet, sleep and hydration could be helpful.

Answered 7/2/2014

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Ignore: Get plenty of rest. Avoid sun exposure. Check blood pressure, cholesterol, and sugar.

Answered 7/3/2014

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Dr. Leila Hashemi answered

Specializes in Internal Medicine

Ignore: Wearing sunscreen to protect your skin is important f you have SLE.

Answered 8/4/2014

3.8k views

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Ignore: Do learn about important test to monitor disease activity like WBC, dsDNA and complement levels.

Answered 12/6/2014

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Ignore: Avoid UV exposure as it can activate lupus activity; wear sunscreen min. SPF 30, and a hat outdooors.

Answered 9/10/2015

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Do live healthier: Lupus has no cure but can be influenced by your general health. While medications are sometimes needed, first look at NO SMOKING, adequate sleep, regular exercise, and a healthy diet as the basis for treating this condition. After that, see a rheumatologist for a precise diagnosis, type of lupus (there are several), and medications.

Answered 11/15/2015

2k views

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Dr. Brian Nguyen answered

Specializes in Obstetrics and Gynecology

Women: Women w/ lupus who get pregnant are at high risk of clots! Consider progestin-only birth control!

Answered 5/5/2016

1.3k views

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