Question 1

the doctors believe that my mother (58 years) may have polycythemia vera. she had a complete lab test today. how long can one live with the disease?

Accepted Answer

Slow illness: Often it lasts for decades as only a nuisance. I hope things turn out well.

Question 2

both my palms and my feet soles are red, most of the time ( rather strong pink). i am petrified that i may be getting my mother's disease polycythemia vera, although her hematologist told me it is not hereditary. 2yrs ago normal extensive bloodwork?

Accepted Answer

: Redness of the hands and feet is NOT a common manifestation of PV. PV is usually not hereditary (most often due to JAK2 gene mutation), your doctor is correct. However, there have been a few documented cases of multiple family members developing PV. To erase any doubt, you can have a CBC done, a simple blood test, for ruling it out because the last blood test was 2 years ago. Good luck.

Question 3

dad has polycythemia vera. under control now but.. is this rare blood disorder genetically passed down and what are very early symptoms? worried..

Accepted Answer

Rare condition: So the genetics is not fully understood.  Mayo clinic reference states is not inherited.  http://www.mayoclinic.com/health/polycythemia-vera/ds00919/dsection=causes.

Question 4

father diagnosed with essential thrombocytosis. doc thinks i may have polycythemia vera. are these genetic since both are myloprolofitive disorders?

Accepted Answer

Both are : Myelproliferative disorders so you would label it one or the other.  Pcrv can have a high platelet count.  You would say et if it seems to be a platelet only phenomenon.  Disorders are related and acquired, rather than genetic in the inherited sense.

Question 5

i have polycythemia vera. what food should i eat or avoid,?

Accepted Answer

There are those: Who would encourage you to go forth with a strict organic raw food diet, like something along the lines of the Gerson diet(which also includes coffee enemas!)  But I don't think there is any strong data to suggests a "curative" diet.  But I will help to eat as healthy as you can, it may help limit further stress on your body.

Question 6

what is the difference between polycythemia, polycythemia rubra vera and polycythemia vera?

Accepted Answer

Polycythemia: Polycythemia is a terminology used for  a condition where your hemoglobin is elevated above the normal range.It does not tell you what the cause of the condition- which could be caused by a primary bone marrow problem -( which is called polycythemia rubra vera -abbreviated as polycythemia vera)  vs some other  secondary conditions such as chronic lung problem, sleep apnea, liver mass/renal mass et.

Question 7

does polycythemia vera affects married life?

Accepted Answer

Possible: If you mena intimacy yes.  Polycythmia can thicken you blood and this can be a cause of impotance.

Question 8

polycythemia vera does it turn into leukemia?

Accepted Answer

Polycythemia : It can evolve into leukemia chances are 1-2 % per year. Polycythemia vera does it not the other variants of polycythemia called secondary polycythemia.

Question 9

primary or secondary thrombocytosis/polycythemia vera, what is this?

Accepted Answer

Polycythemia: P. vera is a primary proliferation of certain bone marrow cells resulting in elevations of the platelet count in the blood. It is considered a pre-neoplastic disorder and merits watching, a bone marrow biopsy perhaps and possible cytogenetic tests. Secondary thrombocythemia is a "reactive" elevation of the platelet count, such as due to anemia, with no malignant potential.

Question 10

i have polycythemia vera should any of the meds be detrimental or of concern to my pcv?

Accepted Answer

Polycythemia vera: Your bone marrow is over-producing red blood cells.  Because of that your blood can get very viscous (gooey?) and can clog up in small vessels, say in the brain or lungs and thus cause small infarcts or strokes.  So every once in a while you will have to be bled to reduce the number of red blood cells in your blood stream. It is the opposite of anemia(too few RBCs).

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Doctor answers about:

Is polycythemia vera an autoimmune disease

A member asked:

The doctors believe that my mother (58 years) may have polycythemia vera. she had a complete lab test today. how long can one live with the disease?

A member asked:

Both my palms and my feet soles are red, most of the time ( rather strong pink). i am petrified that i may be getting my mother's disease polycythemia vera, although her hematologist told me it is not hereditary. 2yrs ago normal extensive bloodwork?

A member asked:

Dad has polycythemia vera. under control now but.. is this rare blood disorder genetically passed down and what are very early symptoms? worried..

A member asked:

Father diagnosed with essential thrombocytosis. doc thinks i may have polycythemia vera. are these genetic since both are myloprolofitive disorders?

A member asked:

I have polycythemia vera. what food should i eat or avoid,?

A member asked:

What is the difference between polycythemia, polycythemia rubra vera and polycythemia vera?

A member asked:

Does polycythemia vera affects married life?

A member asked:

Polycythemia vera does it turn into leukemia?

A member asked:

Primary or secondary thrombocytosis/polycythemia vera, what is this?

A member asked:

I have polycythemia vera should any of the meds be detrimental or of concern to my pcv?

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