Question 1

whats hereditary angioedema?

Accepted Answer

Severe Swelling: Hereditary angioedema is rare but serious genetic immune system problem that is due to a deficiency of c1 esterase inhibitor.  It is characterized by swelling of the face and airways, and my be life threatening.

Question 2

what cause hereditary angioedema?

Accepted Answer

HAE: Hereditary angioedema (hae) is caused by a an uncontrolled activation of a complex cascade of proteins called complement.  Hae is a result of a deficiency or lack of functional c1 esterase inhibitor protein.  Some patients are born with this problem while other may acquire a lack of c1 esterase inhibitor from an underlying disease such as cancer.  There are new treatments available.

Question 3

can anyone have hereditary angioedema?

Accepted Answer

Yes: Hereditary angioedema types 1 and 2 have a very strong genetic component and typically runs in families. However, spontaneous mutations can occur and hae i and ii can occur on anyone.

Question 4

what causes hereditary angioedema to occur?

Accepted Answer

Abnl or absent prote: Hae is the result of missing or a poorly functioning protein called c1 esterase inhibitor. When this protein is missing or abnormal then a patient may to prone to swelling problems which can be life threatening.

Question 5

anyone here treat hereditary angioedema(hae)?

Accepted Answer

allergists can help: There been exciting and new pharmaceutical options developed for the treatment of acute attacks of hereditary angioedema.  Typically board certified allergists are well-versed in the diagnosis and management of hereditary angioedema.

Question 6

at what age do attacks of hereditary angioedema start?

Accepted Answer

Most before age 15: About 40% of people with hereditary angioedema( hae) experience their first episode before age 5, and 75% present before age 15. There is one type of hae(type 3), found in the second decade of life or later, and rarely occurs before puberty.

Question 7

does anyone have experience with hereditary angioedema?

Accepted Answer

Hereditary angio ede: Hereditary angioedema (ha) is a disease that is typically noted to run in families. It  is causes by low levels or poor function in a controller protein called c-1 esterase inhibitor. If swelling (angioedema) occurs with hives, then the angio edema is unlikely to be due to this rare problem. Typical angioedema develops quickly, often maximally within one hour. Ha may swell slowly over many hrs.

Question 8

is hereditary angioedema different from regular angioedema?

Accepted Answer

Inherited v acquired: Angioedema, a condition involving rapid swelling & accumulation of fluid in the skin & deeper tissues, is usually classified as hereditary (similar episodes run in the family) or acquired (due to medications or other allergic reaction). A third category sometimes used is idiopathic, meaning no obvious pathology or cause can be determined. Angioedema can involve the airways & cut off breathing.

Question 9

hereditary angioedema - can anybody tell me anything about?

Accepted Answer

Abnl or absent prote: Hae is the result of missing or a poorly functioning protein called c1 esterase inhibitor. When this protein is missing or abnormal then a patient may to prone to swelling problems which can be life threatening.

Question 10

how long does a hereditary angioedema attack typically last?

Accepted Answer

1-3 days: 24-72 hours is typical.

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Acute hereditary angioedema

A member asked:

Whats hereditary angioedema?

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What cause hereditary angioedema?

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Can anyone have hereditary angioedema?

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What causes hereditary angioedema to occur?

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Anyone here treat hereditary angioedema(hae)?

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At what age do attacks of hereditary angioedema start?

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Does anyone have experience with hereditary angioedema?

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Is hereditary angioedema different from regular angioedema?

A member asked:

Hereditary angioedema - can anybody tell me anything about?

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How long does a hereditary angioedema attack typically last?

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