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A 21-year-old member asked:

Are headaches and migraine related to ehlers-danlos syndrome?

3 doctor answers4 doctors weighed in
Dr. James Marx
Pain Management 49 years experience
See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out.
Dr. William Goldie
Pediatric Neurology 49 years experience
They can be: Ehlers danlos is a disorder of connective tissue. The joints and the skin can be loose and too flexible. There are associated defects in the supportive structures of the neck and blood vessels. There are reports of aneurysms, vascular abnormalities, and compression of the spinal cord and nerves. These problems can result in neck and head pain and migraines. Get a thorough neurologic workup.
Dr. Bradford Landry
Pediatric Rehabilitation Medicine 13 years experience
Usually not directly: Many people with EDS-hypermobility type present also with complaints of headaches. Headaches are not however, a diagnostic feature of EDS-HT. Increased concern would be prudent in other types of EDS as noted by previous posts. Workup by a rheumatologist for classification of EDS type would be helpful and evaluation of migraines by a neurologist could provide appropriate management options

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Last updated Jul 6, 2018


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