A member asked:

Does anyone know someone with tuberous sclerosis who has been seizure free? if so then what medications are they taking?

A doctor has provided 1 answer

Tuberous sclerosis is a variable condition with some never having seizure triggering anomalies. I have known adults whose only expression of their genes was skin findings. For those who develop seizures, I know of no perfect medication for control. Using a neurologist with a special interest in seizure control would be a good idea.

Answered 9/14/2023

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