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A member asked:
What is the life of someone with tuberous sclerosis like? how can i help a loved one with this condition?
A doctor has provided 1 answer
Hugely variable: Because the disease strikes random portions of the brain, different even in affected twins, no two people's experience with the disease is the same. Common sense and common kindness, assistance with the simple things in life, and helping the person be discerning about what interventions are likely to help and those that are not. Touch appropriately. Provide safety.
Answered 12/22/2014
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