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A member asked:
The doctor at mayo cliniic says i have this immune defficancy neutropenia. but knoe one can give mr any answers about the chronic neutropenia registry?
3 doctors weighed in across 2 answers
Registry info...: The severe chronic neutropenia international registry (scnir) was established in 1994 to monitor the clinical course, treatment, and disease outcomes in patients with severe chronic neutropenia (scn). The website for the registry can be found at: http://depts.Washington.Edu/registry/.
Answered 4/15/2013
5.2k views
The scnir is an : International registry exists to track patients with chronic neutropenia, to provide a means for research that hopefully provides better understanding and improved outcomes, and to disseminate the most up to date info to patients and providers. The contact for the registry is bolyard@u.Washington.Edu. The website for more info is www.Depts.Washington.Edu/registry/.
Answered 9/2/2013
4.9k views
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