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A member asked:
Does aortic root dilation associated with ehlers-danlos syndrome usually develop in childhood? or can it first show up in adulthood?
A doctor has provided 1 answer
Unlikely: Although there are many different subtypes of Ehlers-Danlos syndrome, the overall incidence of aortic rd is less common than in Marfan's where it is thought to be about 80%. The attached paper looked at the hypermotile subtype of EDS and found onset usually before age 14 and this seemed to stabilize in adulthood.
Answered 10/24/2017
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