Complex: Surgery needs to be performed in a highly specialized center for cardiac surgery, it is a complex surgery involving several stages, or ultimately a heart transplant, either way, life long follow up is needed, so unless the funds and other support means are available, as social/emotional support, life won't be easy for the child or the family, good luck
Answered 10/28/2015
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Maybe there ?: My oldest HLH patient is now a married 27 yo cardiac clinic nurse.Her road to health has been complex, and it was truly the skill of a lot of fine surgeons and cardiologists that kept her going when things looked bad. She was on the transplant list for a while.Thirty years ago, we were at the point where your doctors seem to be.
Answered 10/28/2015
2.1k views
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