A member asked:

Looking for top doctors in the u.s. who treat cns lupus/ceribritis vasculitis. my 22 year old niece has it and none of her drs have ever treated it.?

3 doctors weighed in across 2 answers
Dr. Amin Ashrafzadeh answered

Specializes in Ophthalmology

Need Rheumatologist: My suggestion is to see a progressive rheumatologist in your relatively local area. There are many great centers around the country. Your location and access to the doctor can not be discounted. This is a long term disease, not a single visit issue. Many great doctors are around you.

Answered 1/18/2014

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UP TO THE CHALLENGE: Lupus that causes inflammation of the brain and spinal cord (central nervous system or cns) is known as CNS lupus. Symptoms: seizures, cognitive difficulties (learning, memory, and thought), headaches, psychiatric symptoms: anxiety, depression, and hallucinations. There are effective treatments: high dose steroids, cytoxan, cellcept, (mycophenolate mofetil) imuran, and rituxan. Risks and benefits discussion: important.

Answered 9/28/2016

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