A member asked:

I recently had a cyst removed on my forehead. the pathology report showed positive for neurofibromatosis. i don't have any feeling in tha area. what should i do?

6 doctors weighed in across 5 answers

Nerve removed: Nf is a genetic condition affecting nerves. In your case, the sensory nerve was probably affected, and since it was removed, there is numbness. Alternatively, normal skin sensory nerves were cut during the procedure. You should gradually regain sensation in this situation.

Answered 9/28/2016

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Neurofibromatosis: A neurofibroma is a benign tumor derived from nerve tissue. It can grow and compress the nerve from which it arises. It can be a solitary lesion or be part of a group of hereditary syndromes characterized by multiple neurofibromas, both superficial and deep. Is this an isolated lesion or do you have others like it? You should follow up with your physician, regardless of what kind it is.

Answered 8/14/2015

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Gene mutation : Neurofibromatosis is a disorder resulted from a single gene mutation (nf1). Patients may have multiple cutaneous tumors. Some may have solitary deep tumors. Around 3.5-4.6% patients may progress to have malignancy. Surgical resection is not an option since it will regrow.

Answered 9/24/2016

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Dr. Johanna Fricke answered

Specializes in Pediatrics - Developmental and Behavioral

I agree : One of the things you need know if you are of child-bearing age is that if it is nf 1, each of your children has a 50% chance of inheriting it, & their symptoms may be such that it impacts their lives differently than it has yours. If there is any doubt, genetic testing is available.

Answered 11/15/2012

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Dr. Gerald Mandell answered

Specializes in Nuclear Medicine

Nerve tumor: Remove of neurofibroma may involve nerve endings and therefore produce loss of sensation in area. May return somewhat with time.

Answered 8/11/2014

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