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Mount Vernon, WA
A 38-year-old female asked:

Is there anything that can be done about neurofibromatosis ? either to slow or stop the growth of new tumors? reduce the size of existing ones?

2 doctor answers3 doctors weighed in
Dr. Troy Reyna
Pediatric Surgery 46 years experience
Depends: Neurofibromatosis is a systemic disease. If a neurofibromas is in a dicey location and can cause serious damage then sometimes chemotherapy is recommended if surgery is risky. Trouble some lumps can be removed surgically.
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Dr. Gerald Mandell
Nuclear Medicine 54 years experience
not usually: Many women with nf1 note increase in growth of preexisting tumors during pregnancy.Adults with nf1 acquire more tumors with age.Nfs develop gradually over time, may continue to grow in size for period of time.Nothing person can do to prevent. Nf. May be removed by surgery or occasionally by laser. If neurofibroma is removed, may or may not grow back.No effect by foods, smoking, caffeine or heat.
Created for people with ongoing healthcare needs but benefits everyone.
Last updated Feb 28, 2018

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