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A member asked:
What is known as intractable epilepsy?
7 doctors weighed in across 4 answers
Untreatable: About 60% of seizures are controlled by one medication 20% with more than one med, 10% with surgery, but fewer than 10% do not respond to any measures they are termed intractable, with recent advances in surgery, vagal nerve stimulation, special diets etc this number is shrinking!
Answered 8/12/2012
6.1k views
Difficult to control: Most epilepsy is easy to control. At least 60% of epileptic patients can be controlled with just one medication. Another 30% take more complex regimen to control. At least 10% of epilepsy patients are not fully controlled even with multiple medications, surgeries, implanted devices, etc. These are considered as intractable. Most epilepsy centers have specific clinics just for these patients.
Answered 9/20/2019
5.5k views
Not controlled by me: Epilepsy which cannot be (or is not) adequately controlled by meds. Typically we use this label after someone has not adequately responded to good trials of 4+ anti seizure meds.
Answered 12/7/2014
3.5k views
Intractable epilepsy: There is so much information on intractable epilepsy - every year we learn more. There are some wonderful support group websites with information: epilepsy.com youngepilepsy.org.uk. epilepsysociety.org.uk and some where you can find a doctor who specializes American Epilepsy Society is: AESnet.org
Answered 9/11/2016
989 views
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