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A 48-year-old member asked:

How hard is it to live with hht (hereditary hemorrhagic telangiectasia)?

1 doctor answer1 doctor weighed in
Dr. Asaf Presente
Pulmonary Critical Care 17 years experience
Complex Q: Everyone is different. If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.

Similar questions

A 42-year-old member asked:

What can be done about bleeds from hht, hereditary hemorrhagic telangiectasia?

1 doctor answer1 doctor weighed in
Dr. Asaf Presente
Pulmonary Critical Care 17 years experience
Embolism: Bleeding from hht fall into two categories - minor ie. Small bleeds from telangectasia on mucosal surfaces like the nose/lips that can be inconvenient but usually stop easily, and potentially life threatening bleeds from avns in the lung, liver or brain. These avns should be screened for on a regular basis once hht has been diagnosed and may need embolization (sealed up from the inside) if found.
A 35-year-old member asked:

What do I need to know about living with hht (hereditary hemorrhagic telangiectasia).?

1 doctor answer2 doctors weighed in
Dr. Asaf Presente
Pulmonary Critical Care 17 years experience
Complex Q: If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.
A 47-year-old member asked:

Living with hht (hereditary hemorrhagic telangiectasia), how to make things better?

1 doctor answer2 doctors weighed in
Dr. Thomas Wright
Phlebology 30 years experience
Treat iron deficienc: There is no cure for hht hereditary hemorrhagic telangiectasia. The most important things are to avoid complications like iron deficiency anemia, which is common.
A 46-year-old member asked:

Can you help me with hereditary hemorrhagic telangiectasia (hht) please give me advice?

1 doctor answer2 doctors weighed in
Dr. Keith Vaux
Clinical Genetics 28 years experience
Certainly: The most accurate information is available here: http://ghr.nlm.nih.gov/condition/hereditary-hemorrhagic-telangiectasia There are clinics in various locations around the country, Including one here in San Diego

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Last updated Mar 26, 2013
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