A 48-year-old member asked:
How hard is it to live with hht (hereditary hemorrhagic telangiectasia)?
1 doctor answer • 1 doctor weighed in
Dr. Asaf Presenteanswered
Pulmonary Critical Care 17 years experience
Complex Q: Everyone is different. If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.
5.7k viewsAnswered >2 years ago
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A 42-year-old member asked:
What can be done about bleeds from hht, hereditary hemorrhagic telangiectasia?
1 doctor answer • 1 doctor weighed in
Dr. Asaf Presenteanswered
Pulmonary Critical Care 17 years experience
Embolism: Bleeding from hht fall into two categories - minor ie. Small bleeds from telangectasia on mucosal surfaces like the nose/lips that can be inconvenient but usually stop easily, and potentially life threatening bleeds from avns in the lung, liver or brain. These avns should be screened for on a regular basis once hht has been diagnosed and may need embolization (sealed up from the inside) if found.
5.7k viewsAnswered >2 years ago
A 35-year-old member asked:
What do I need to know about living with hht (hereditary hemorrhagic telangiectasia).?
1 doctor answer • 2 doctors weighed in
Dr. Asaf Presenteanswered
Pulmonary Critical Care 17 years experience
Complex Q: If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.
5.7k viewsReviewed >2 years ago
A 47-year-old member asked:
Living with hht (hereditary hemorrhagic telangiectasia), how to make things better?
1 doctor answer • 2 doctors weighed in
Dr. Thomas Wrightanswered
Phlebology 30 years experience
Treat iron deficienc: There is no cure for hht hereditary hemorrhagic telangiectasia. The most important things are to avoid complications like
iron deficiency anemia, which is common.
4.6k viewsReviewed >2 years ago
A 46-year-old member asked:
Can you help me with hereditary hemorrhagic telangiectasia (hht) please give me advice?
1 doctor answer • 2 doctors weighed in
Dr. Keith Vauxanswered
Clinical Genetics 28 years experience
Certainly: The most accurate information is available here: http://ghr.nlm.nih.gov/condition/hereditary-hemorrhagic-telangiectasia
There are clinics in various locations around the country, Including one here in San Diego
3.8k viewsReviewed >2 years ago
Last updated Mar 26, 2013
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