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A 48-year-old member asked:

How hard is it to live with hht (hereditary hemorrhagic telangiectasia)?

1 doctor answer1 doctor weighed in
Dr. Asaf Presente
Pulmonary Critical Care 18 years experience
Complex Q: Everyone is different. If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.
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Similar questions

A 42-year-old member asked:

What can be done about bleeds from hht, hereditary hemorrhagic telangiectasia?

1 doctor answer1 doctor weighed in
Dr. Asaf Presente
Pulmonary Critical Care 18 years experience
Embolism: Bleeding from hht fall into two categories - minor ie. Small bleeds from telangectasia on mucosal surfaces like the nose/lips that can be inconvenient but usually stop easily, and potentially life threatening bleeds from avns in the lung, liver or brain. These avns should be screened for on a regular basis once hht has been diagnosed and may need embolization (sealed up from the inside) if found.
Created for people with ongoing healthcare needs but benefits everyone.
A 35-year-old member asked:

What do I need to know about living with hht (hereditary hemorrhagic telangiectasia).?

1 doctor answer2 doctors weighed in
Dr. Asaf Presente
Pulmonary Critical Care 18 years experience
Complex Q: If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.
Created for people with ongoing healthcare needs but benefits everyone.
A 47-year-old member asked:

Living with hht (hereditary hemorrhagic telangiectasia), how to make things better?

1 doctor answer2 doctors weighed in
Dr. Thomas Wright
Phlebology 31 years experience
Treat iron deficienc: There is no cure for hht hereditary hemorrhagic telangiectasia. The most important things are to avoid complications like iron deficiency anemia, which is common.
Created for people with ongoing healthcare needs but benefits everyone.
A 46-year-old member asked:

Can you help me with hereditary hemorrhagic telangiectasia (hht) please give me advice?

1 doctor answer2 doctors weighed in
Dr. Keith Vaux
Clinical Genetics 29 years experience
Certainly: The most accurate information is available here: http://ghr.nlm.nih.gov/condition/hereditary-hemorrhagic-telangiectasia There are clinics in various locations around the country, Including one here in San Diego
Created for people with ongoing healthcare needs but benefits everyone.

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Last updated Mar 26, 2013
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