U.S. doctors online nowAsk doctors free
A 40-year-old member asked:

i was just wondering how bad is hereditary hemorrhagic telangiectasia?

1 doctor answer4 doctors weighed in
Dr. Thomas Wright
Phlebology 29 years experience
Not that bad: You will see in the medical literature that most people with hht have a normal lifespan.The commonly seen skin lesions and nosebleeds usually develop during childhood. The avms (arterial-venous malformations) are thought to be present from birth, but don't have to cause any symptoms. Frequent nosebleeds are usually the most common symptom.

90,000 U.S. doctors in 147 specialties are here to answer your questions or offer you advice, prescriptions, and more. Get help now:

Ask doctors free
Personalized answers
Free
Talk to a doctor
24/7 visits
$15 per month

Similar questions

A 34-year-old member asked:

How do people treat hereditary hemorrhagic telangiectasia?

1 doctor answer2 doctors weighed in
Dr. Robert Stuart
A Verified Doctor answered
A US doctor answered Learn more
Investigate: Most people with hht just have dilated tiny blood vessels visible in their skin, but the abnormal blood vessels can occur anywhere in the body and you would want to have a doctor investigate, especially to make sure you don't have a vascular lesion or aneurism in the brain that could cause more serious trouble.
A 37-year-old member asked:

Drs, how do you detect hereditary hemorrhagic telangiectasia?

1 doctor answer1 doctor weighed in
Dr. Roman Bronfenbrener
Dermatology 9 years experience
History & Physical: Hht, or osler-weber-rendu syndrome, can be detected on physical examination with telangiectasia (red, lacy like, dilated blood vessels that blanch with pressure) over a patients oral mucosa (lips, cheeks, tongue) etc and on their skin. Patients may also have a history of recurrent nosebleeds and maybe even GI bleeding.
A 46-year-old member asked:

What is hereditary hemorrhagic telangiectasia?

1 doctor answer1 doctor weighed in
Dr. Roman Bronfenbrener
Dermatology 9 years experience
History & Physical: Hht, or osler-weber-rendu syndrome, can be detected on physical examination with telangiectasia (red, lacy like, dilated blood vessels that blanch with pressure) over a patients oral mucosa (lips, cheeks, tongue) etc and on their skin. Patients may also have a history of recurrent nosebleeds and maybe even GI bleeding.
A 48-year-old member asked:

Is there a link between any other disease and hereditary hemorrhagic telangiectasia?

1 doctor answer2 doctors weighed in
Dr. Asaf Presente
Pulmonary Critical Care 16 years experience
Complications: While hht is a stand alone genetic disease - because it can affect a variety of organs there are several associated complications including iron deficiency anemia (from bleeding), pulmonary hypertension or high output cardiac failure - from avms. Rarely, hht is associated with juvenile polyposis (comes from mutation in 1 of the 3 genes known to cause hht) and requires additional care.
A 35-year-old member asked:

What do I need to know about living with hht (hereditary hemorrhagic telangiectasia).?

1 doctor answer2 doctors weighed in
Dr. Asaf Presente
Pulmonary Critical Care 16 years experience
Complex Q: If a person has been diagnosed with hht they should see a doctor regularly who can direct their care and screen for complications. More information can be found at http://hht.Org/about-hht/.

Related questions

A 35-year-old member asked:
1 doctor answer1 doctor weighed in
A 48-year-old member asked:
1 doctor answer2 doctors weighed in
A 46-year-old member asked:
1 doctor answer2 doctors weighed in

90,000 U.S. doctors in 147 specialties are here to answer your questions or offer you advice, prescriptions, and more. Get help now:

Ask doctors free
Personalized answers
Free
Talk to a doctor
24/7 visits
$15 per month
Last updated Dec 30, 2013
Connect with a U.S. board-certified doctor by text or video anytime, anywhere.
24/7 visits
$15 per month

Disclaimer:

Content on HealthTap (including answers) should not be used for medical advice, diagnosis, or treatment, and interactions on HealthTap do not create a doctor-patient relationship. Never disregard or delay professional medical advice in person because of anything on HealthTap. Call your doctor or 911 if you think you may have a medical emergency.