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I have suspected EDS hyper type (no UK doctor available to diagnose via NHS) and I'm wondering if it could be linked to the pain I get with that? It's worse at night I can't sleep for feeling that there are insects crawling over me in my bed, tickling and
My son, 37, has EDS. He noticed his right thigh muscle has atrophied.The area is dented with very apparent atropy approx 7 inches of hollowed-out area. Could it be due to EDS or ALS? Or something else? What type of doctor should he see? Thank you?
Can any doctors or people who've been treated for eds please tell me how to get diagnosis?
I already have eds and now my doc thinks I may have hypothyroidism too. What can I do?
I'm a 57 year old female. My maternal family and I all show various signs and symptoms of EDS, but I can't find a doctor who knows much about it or is?
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