My child has giant axonal neuropathy (gan). what doctors should we prepare to see?

Kinky hair always: There.Usually appears in infancy or early childhood, and is progressive. Early signs of the disorder often present in the peripheral nervous system, causing individuals with this disorder to have problems walking. Later, normal sensation, coordination, strength, and reflexes become affected. Hearing or vision problems may also occur.

Pediatric neurologis: You child has a hereditary rare problem, and you may find your best advice and guidance at a children's hospital associated with an academic facility. Find a pediatric neurologist with experience in neuromuscular disorders.