What do you advise if i suffer from a rare eczema (docs are still trying to figure out the what's and why's?

See specialist: Treatments that you might not have tried that could improve your symptoms. Higher dose topical corticosteroid ointments, better skin hygiene, more frequent moisturization, chlorine baths, wet wraps, phototherapy, oral antibiotics, calcium/vitamin D supplementation, or more aggressive systemic medications like anti-inflammatories or immune-modulators. Skin biopsy could shed more light on diagnosis.