A member asked:

Please help! what is the infant mortality rate of neurofibromatosis 1?

A doctor has provided 1 answer
Dr. Gerald Mandell answered

Specializes in Nuclear Medicine

Depends amt. of nf: Congenital generalized (disseminated) neurofibromatosis (detected prenatally) is associated with a poor prognosis, with a mortality rate of 92%. Survival rates for patients detected before and after birth were 28% and 62%.However most cases of nf are focal and not disseminated without evidence of increased infantile mortality rate. In people with nf the overall decrease in life span is about 8 yrs.

Answered 1/19/2014

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