Question 1

causes of wegeners granulomatosis and treatment?

Accepted Answer

Autoimmune disease: Like all autoimmune diseases, the cause is not really known, but likely a combination of genetic factors and environmental exposures (e.g., infections, chemicals, pollutants).  Treatment depends on how severe disease it is.  Typically steroids (e.g. Prednisone) and if severe, Cytoxan or rituxan (rituximab).  If limited disease (just nasal/upper airway involvement), Methotrexate may be sufficient.

Question 2

would wegeners or lupus show up on nose biopsy ? my biopsy shows chronic inflammation. what would this suggest? dr looking into this further.

Accepted Answer

Inflammation : Wait for your doctor,s diagnosis as he has all the answers. Good Luck

Question 3

has anyone ever heard of the disease wegeners granulamatosis?

Accepted Answer

Yes: Wegener's granulomatosis with polyangiitis is an incurable form of vasculitis (inflammation of blood vessels) that affects the lungs, kidneys, and other organs. Due to its organ damage, it is life-threatening and requires long-term immunosuppression. Five-year survival is up to 87%, with some of the mortality due to toxicity of treatment. Since that is an average figure, some will live longer.

Question 4

what is the disease wegeners granulamatosis in kids?

Accepted Answer

WG: Wegener’s granulomatosis (WG) is a rare disease that causes the walls of blood vessels to become inflamed (called vasculitis). This limits blood flow to tissues and can affect any organ.  WG is a type of autoimmune disease. This means the body’s immune system attacks its own tissues. Its cause is unknown.

Question 5

can you have a butterfly rash with lupus thats mildly red and not bright? in process of being tested. (no other skin issues- its not rosacea, etc.)

Accepted Answer

Any color intensity:  Most red faces are not lupus. The color intensity with a patient with lupus can be mild too very bright. The diagnosis of lupus depends on many criteria many lab studies and needs to be done with a rheumatologist

Question 6

please give advice on how 2 fight the fatigue that comes with p.o.t.s& lupus.this is a huge struggle for me.i am also iron deficient but on supplement?

Accepted Answer

FATIGUE: Lupus is a major cause of disease.  You should be on treatment for the lupus.  Specialists who treat lupus are the rheumatologists

Question 7

can lupus cause malabsorption when not treated? i jut got a message from my doc saying "strongly specific to lupus" could this be the answer to it all the p.o.t.s and weight loss/malabsorption

Accepted Answer

Go back to doctor: You need to sit down and have a face to face chat with your doctor who will be happy to explain to you in detail whether or not you actually have sle and whether or not it is directly responsible for your malabsorption syndrome, which is quite possible.  Without seeing you cannot diagnose this.

Question 8

i hate my life and how i have to be afraid of my medical illness's at 27. lupus. p.o.t.s. now maybe lung disease! yes u can see im anxious w/ my questions but i just want to be ok for once. just ok.

Accepted Answer

Chronic illness is : Exhausting to deal with. Have you consider therapy? If might be a kind and good thing to do for yourself. We all need ways to refill our well when our emotional, physical & spiritual reserves have dwindled. Be well.

Question 9

doc tested me for syphilis with fta-abs. it was positive. after 10 confirmatory test only 2 fta-abs were pos. 4 rpr test neg. only 1 partner hes neg but went to china 10 yrs ago &got shots. syphilis or do i have lupus? could i got it from the shot?

Accepted Answer

Not syphilis: Almost certainly you do not have syphilis and never did. Usually no cars can be found for false positive syphilis test results. Lupus might be possible, but it is rare in this situation. Keep working with your doctor(s).

Question 10

what;s the best pain medicine for lupus patients?

Accepted Answer

None: lupus needs to be controlled with meds that treat the underlying inflammatory process, not with pain meds.

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Doctor answers about:

Wegeners granulomatosis and lupus coexisting

A member asked:

Causes of wegeners granulomatosis and treatment?

A member asked:

Would wegeners or lupus show up on nose biopsy ? my biopsy shows chronic inflammation. what would this suggest? dr looking into this further.

A member asked:

Has anyone ever heard of the disease wegeners granulamatosis?

A member asked:

What is the disease wegeners granulamatosis in kids?

A member asked:

Can you have a butterfly rash with lupus thats mildly red and not bright? in process of being tested. (no other skin issues- its not rosacea, etc.)

A member asked:

Please give advice on how 2 fight the fatigue that comes with p.o.t.s& lupus.this is a huge struggle for me.i am also iron deficient but on supplement?

A member asked:

Can lupus cause malabsorption when not treated? i jut got a message from my doc saying "strongly specific to lupus" could this be the answer to it all the p.o.t.s and weight loss/malabsorption

A member asked:

I hate my life and how i have to be afraid of my medical illness's at 27. lupus. p.o.t.s. now maybe lung disease! yes u can see im anxious w/ my questions but i just want to be ok for once. just ok.

A member asked:

Doc tested me for syphilis with fta-abs. it was positive. after 10 confirmatory test only 2 fta-abs were pos. 4 rpr test neg. only 1 partner hes neg but went to china 10 yrs ago &got shots. syphilis or do i have lupus? could i got it from the shot?

A member asked:

What;s the best pain medicine for lupus patients?

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