A 44-year-old member asked:
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has anyone ever heard of the disease wegeners granulamatosis?

1 doctor answer
Dr. Ted King
A Verified Doctor answered
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Yes: Wegener's granulomatosis with polyangiitis is an incurable form of vasculitis (inflammation of blood vessels) that affects the lungs, kidneys, and other organs. Due to its organ damage, it is life-threatening and requires long-term immunosuppression. Five-year survival is up to 87%, with some of the mortality due to toxicity of treatment. Since that is an average figure, some will live longer.
Answered on Jun 8, 2018
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Dr. Ed Friedlander
44 years experience Pathology
This is good advice. Wegener's is uniformly fatal if untreated. It cannot be cured, but it often goes away on its own after a few years, allowing medications to be tapered and discontinued.
Jun 8, 2018

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