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Systemic mastocytosis life expectancy

A 43-year-old member asked:
Dr. Brant Ward
Allergy and Immunology 13 years experience
Usually not: Most people with systemic mastocytosis (sm) have a normal lifespan. Episodes of anaphylaxis with sm can be dangerous if not treated properly, so it's ... Read More

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A 31-year-old member asked:
Dr. Brant Ward
Allergy and Immunology 13 years experience
See a specialist: Systemic mastocytosis (sm) is an overgrowth of mast cells (immune cells that release histamine and other chemicals upon activation) in the bone marrow... Read More
A 45-year-old member asked:
Dr. T. Allen Merritt
Neonatology 49 years experience
Normal: Unless there is an anaphylactoid reaction there should be a normal life span.
Dr. Brant Ward
Allergy and Immunology 13 years experience
Usually normal: Most people with a systemic mastocytosis have the 'indolent' variey, in which case their life span is the same as anyone else's (provided they get app... Read More
A 41-year-old member asked:
Dr. Brant Ward
Allergy and Immunology 13 years experience
Control of symptoms: After diagnosis, treatment is mostly focused on controlling symptoms. Flushing, itching, and (to some extent) GI symptoms are helped by antihistamines... Read More
A 40-year-old member asked:
Dr. David Rosenfeld
Pain Management 27 years experience
See below: Systemic mastocytosis, often termed systemic mast cell disease (smcd), is a heterogeneous clonal disorder of the mast cell and its precursor cells. It... Read More
A 48-year-old member asked:
Dr. Brant Ward
Allergy and Immunology 13 years experience
See a specialist!: Treatment of aggressive systemic mastocytosis can be extremely complex. If at all possible, you should see a specialist with experience treating this ... Read More
A 50-year-old member asked:
Dr. Ed Friedlander
Pathology 44 years experience
Widely variable: Overall about 60% are dead in ten years, 80% on 20 years but 10% are long-term survivors; there are no cures. A lot depends on the genetics of your le... Read More
A 47-year-old member asked:
Dr. Brant Ward
Allergy and Immunology 13 years experience
Usually normal: Most people with a systemic mastocytosis have the 'indolent' variey, in which case their life span is the same as anyone else's (provided they get app... Read More
A 41-year-old female asked:
Dr. Liawaty Ho
Hematology and Oncology 23 years experience
D/w oncologist: There are indolent systemic masto, and agressive systemic mastocytosis (asm). Many times, with indolent disease- therapy will be aimed only to control... Read More
A 40-year-old male asked:
Dr. John Chiu
Allergy and Immunology 57 years experience
?: Elevated 5 HIAA is linked to carcinoid and not mastocytosis. Please clarify your question

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