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A member asked:
Is systemic mastocytosis life-threatening?
A doctor has provided 1 answer
Usually not: Most people with systemic mastocytosis (sm) have a normal lifespan. Episodes of anaphylaxis with sm can be dangerous if not treated properly, so it's important to use Epipen (epinephrine) and lay flat with the feet elevated slightly. Rarely, sm can be aggressive or associated with a leukemia. In these cases, lifespan may be shortened, but the sm may respond to chemo. See a specialist in masto for more info.
Answered 3/2/2019
5.5k views
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Can Sandostatin (octreotide) LAR be used as treatment of elevated 5-HIAA in aggressive type of systemic mastocytosis? Thank you. (repeated question)
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