Q: how many people have been diagnosed with sporadic fatal insomnia?

Very very few: <100 around the world & over time. You don't have it. Btw, it is closely related to mad cow disease & creutzfeldt-jakob disease & is caused by accumulation of misfolded prion proteins in the brain.

Q: what is sporadic fatal insomnia? what are the sign and symptoms of it?

SFI: Sporadic fatal insomnia is a very rare, transmissible neurodegenerative disease characterized by the accumulation of a misfolded protein (the prion protein) in the brain. Symptoms include disrupted sleep, autonomic dysfunction, and motor abnormalities including myoclonus, ataxia, dysarthria, dysphagia, and pyramidal signs like clonus on exam. There may be peculiar behaviors too.

Q: has anyone in sweden got fatal familia insomnia or sporadic fatal insomnia?

Hard to say: There are only about 100 people alive with ffi (estimated), and a handful of sfi diagnoses. Considering some of the cases are in europe, there's a chance they may be in sweden, diagnosed or undiagnosed?

Q: why do i have all the symptoms for sporadic fatal insomnia? im pretty scared

Scared enough: To go see a doctor? That will be the only way to find out. If you are too scared to go see a doctor, because you don't really want to know, then that's ok too. There is no treatment for it anyways. The only benefit of seeing a doctor is to find out you are wrong and you don't really have it. In that case, you will still have to figure out what you really have. Will that be worth it to you?

Q: what are the odds of someone having/developing sporadic fatal insomnia right now?

Very low: Sporadic fatal insomnia is very rare. In 30 years of medical practice I have not come across a single case. It may be related to a very rare illness called creutzfeld-jacob disease.

Q: has there been any cases of sporadic fatal insomnia or fatal famillia insomnia in sweden?

No: This disorder is extremely rare. The inheritable form apparently began with an italian family in the 1700's. Pubmed contains no reported cases of the sporadic or familial form in sweden.

Question 1

how rare is sporadic fatal insomnia?

Accepted Answer

SFI: Only 8 cases have ever been diagnosed as of july 2005, so it is extremely rare.

Question 2

how common is sporadic fatal insomnia?

Accepted Answer

Sfi: In my 30 years of practice, I have not seen one case. Researching the history showed there were less than 100 cases ever reported worldwide.

Question 3

how to know if i have sporadic fatal insomnia?

Accepted Answer

Sleep study: I am assuming that you mean sleep apnea which many people have.  It is not typically fatal but could be because it involves stopping breathing during sleep.  The way to identify this is through a sleep study which can be set up by your PCP.  There are many efffective modes of treatment so it is not something to worry about.  just get checked.

Question 4

what is the symptoms of sporadic fatal insomnia?

Accepted Answer

Fatal insomnia: Sporadic fatal insomnia is believed to be a prion disease that cause degeneration of the nervous system.  Symptoms include disrupted sleep and daytime hypersomnolence, abnormalities of the autonomic system, abnormal movements , imbalance speech and swallowing problems.  Abnormal behavior may be assumed to be due to psychiatric illness.

Question 5

how many people have been diagnosed with sporadic fatal insomnia?

Accepted Answer

Very very few: <100 around the world & over time.  You don't have it.  Btw, it is closely related to mad cow disease  & creutzfeldt-jakob disease & is caused by accumulation of misfolded prion proteins in the brain.

Question 6

what is sporadic fatal insomnia? what are the sign and symptoms of it?

Accepted Answer

SFI: Sporadic fatal insomnia is a very rare, transmissible neurodegenerative disease characterized by the accumulation of a misfolded protein (the prion protein) in the brain.  Symptoms include  disrupted sleep, autonomic dysfunction, and motor abnormalities including myoclonus, ataxia, dysarthria, dysphagia, and pyramidal signs like clonus on exam.  There may be peculiar behaviors too.

Question 7

has anyone in sweden got fatal familia insomnia or sporadic fatal insomnia?

Accepted Answer

Hard to say: There are only about 100 people alive with ffi (estimated), and a handful of sfi diagnoses.  Considering some of the cases are in europe, there's a chance they may be in sweden, diagnosed or undiagnosed?

Question 8

why do i have all the symptoms for sporadic fatal insomnia? im pretty scared

Accepted Answer

Scared enough: To go see a doctor?  That will be the only way to find out.  If you are too scared to go see a doctor, because you don't really want to know, then that's ok too.  There is no treatment for it anyways.  The only benefit of seeing a doctor is to find out you are wrong and you don't really have it.  In that case, you will still have to figure out what you really have.  Will that be worth it to you?

Question 9

what are the odds of someone having/developing sporadic fatal insomnia right now?

Accepted Answer

Very low: Sporadic fatal insomnia is very rare. In 30 years of medical practice I have not come across a single case. It may be related to a very rare illness called creutzfeld-jacob disease.

Question 10

has there been any cases of sporadic fatal insomnia or fatal famillia insomnia in sweden?

Accepted Answer

No: This disorder is extremely rare.  The inheritable form apparently began with an italian family in the 1700's.  Pubmed contains no reported cases of the sporadic or familial form in sweden.

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Sporadic fatal insomnia

A member asked:

How rare is sporadic fatal insomnia?

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How common is sporadic fatal insomnia?

A member asked:

How to know if i have sporadic fatal insomnia?

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What is the symptoms of sporadic fatal insomnia?

A member asked:

How many people have been diagnosed with sporadic fatal insomnia?

A member asked:

What is sporadic fatal insomnia? what are the sign and symptoms of it?

A member asked:

Has anyone in sweden got fatal familia insomnia or sporadic fatal insomnia?

A member asked:

Why do i have all the symptoms for sporadic fatal insomnia? im pretty scared

A member asked:

What are the odds of someone having/developing sporadic fatal insomnia right now?

A member asked:

Has there been any cases of sporadic fatal insomnia or fatal famillia insomnia in sweden?

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