Question 1

is melasma related to lupus?

Accepted Answer

No: It is simply a phenomenon that occurs in some women when pregnant.

Question 2

why do i have a lupus flare during my menstrual cycle most of the time? also my p.o.t.s symptoms worsen during this time how can i help this?

Accepted Answer

Inflammation: Lupus and the pre-menstrual phase of the cycle are both known for being states of increased inflammation, so it makes sense that you might have this and notice it during your menstrual cycle.  I would speak with your rheumatologist regarding medications that are safe to take to diminish the flare symptoms, as some anti-inflammatories are harmful for kidneys.  Best of luck.

Question 3

iam an s.l.e lupus patient, & i want to try suppliments, with my workouts such as, karbolyn xr3, stance bcaa, gluamatic. will it cause harm to my body?

Accepted Answer

Not worth it: There is no scientific proof that these supplements are beneficial for your SLE but there are unknown risks which may be harmful. I'd advise against taking this step.

Question 4

please can you interpret these results ? 
i will also consult my own gp.
lupus clotting 
prothrombin time:11.8 seconds 
appt:31.8s
appt 80:20 mix 30.9 s
mixing plasma appt: 29.2

Accepted Answer

Second Opinion: You're asking for a second opinion from a forum that does not give second opinions, just general answers to general medical/dental questions. Please consult your GP.

Question 5

what;s the best pain medicine for lupus patients?

Accepted Answer

None: lupus needs to be controlled with meds that treat the underlying inflammatory process, not with pain meds.

Question 6

is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, karbolyn xr3, stance bcaa, gluamatic

Accepted Answer

Not sure, I don't : think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out.

Question 7

can i have lupus if my ana is positive, tired is 1:320 homogeneous diffuse, but ena panel is negative. i do have some s/s?

Accepted Answer

See a rheumatologist: For assessment, lupus isn't an easy diagnosis to make, an expert would better help you, good luck

Question 8

i have vonwillebrands disease and lupus (sle).  is it to dangerouse for me to travel out of the u.s. to a disease infested, poverty sticken country?

Accepted Answer

Maybe: Not particularly worries about von willebrands disease. You are in fact immunocompromised  with lupus i  suspect degree of control and current medications. Will help your rheumatologist arrive at recommendations to help you make a decision regarding risk.

Question 9

are lupus, endometriosis, and pots connected? i was diagnosed with all 3 and dont think its a coincidence. there hass to be an underlying autoimmune issue?

Accepted Answer

: New evidence from a study in Canada strongly suggests that POTS is an autoimmune disorder. In your case I think it would be secondary to lupus. Endometriosis is not currently listed as an autoimmune disorder but has some of the characteristics and may increase the risk if a coexistent autoimmune disease. Does your rheumatologist agree with these concepts or explanations?

Question 10

lupus patient had a high s-alkaline phosphatase of 294 ui/l and elevated cholestrol. all other test results were clear. should i be concerned ?

Accepted Answer

Probably: Elevation of ALPtase is of concerned but it may also indicate bone repair after a fracture.  The conservative approach would be to check it again in a month to see if  it gets back to normal.  If the problem persists or worsens, further evaluation will  be needed.

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Doctor answers about:

Melasma and lupus

A member asked:

Is melasma related to lupus?

A member asked:

Why do i have a lupus flare during my menstrual cycle most of the time? also my p.o.t.s symptoms worsen during this time how can i help this?

A member asked:

Iam an s.l.e lupus patient, & i want to try suppliments, with my workouts such as, karbolyn xr3, stance bcaa, gluamatic. will it cause harm to my body?

A member asked:

Please can you interpret these results ? i will also consult my own gp. lupus clotting prothrombin time:11.8 seconds appt:31.8s appt 80:20 mix 30.9 s mixing plasma appt: 29.2

A member asked:

What;s the best pain medicine for lupus patients?

A member asked:

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, karbolyn xr3, stance bcaa, gluamatic

A member asked:

Can i have lupus if my ana is positive, tired is 1:320 homogeneous diffuse, but ena panel is negative. i do have some s/s?

A member asked:

I have vonwillebrands disease and lupus (sle). is it to dangerouse for me to travel out of the u.s. to a disease infested, poverty sticken country?

A member asked:

Are lupus, endometriosis, and pots connected? i was diagnosed with all 3 and dont think its a coincidence. there hass to be an underlying autoimmune issue?

A member asked:

Lupus patient had a high s-alkaline phosphatase of 294 ui/l and elevated cholestrol. all other test results were clear. should i be concerned ?

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