Question 1

agg. systemic mastocytosis. this mean my anaphylaxis food/drug allergies will now end since on cromolyn? could itp dx be part of asm or can have both?

Accepted Answer

No, and No: cromolyn will not end probability of anaphylaxis, and if it happens needs to be treated, ITP isn't part of the disease, yes a patient can have both as separate diseases, aggressive severe mastocytosis is a rare disease, much rare than systemic mastocytosis, which is already a rare disease, diagnosis  / management need to be in a tertiary care facility, need to adhere to treatment well &amp; follow up

Question 2

how do i find information on mastocytosis?

Accepted Answer

Skin problem: This is a skin disorder.  I recommend asking a dermatologist this question.

Question 3

how do i find information on mastocytosis on a reputible site?

Accepted Answer

NIH website: The national institutes of health have  good information about mastocytosis on their website: http://www.Niaid.Nih.Gov/topics/mastocytosis/pages/default.Aspx
the mastocytosis society is a patient-run organization, and they have some good information on their website as well: http://www.Tmsforacure.Org/welcome.Php

if you have specific ?S, you should see a specialist with experience in mastocytosis.

Question 4

does mastocytosis go away?

Accepted Answer

Skin problem: This is a skin disorder.  I recommend asking a dermatologist this question.

Question 5

how to control mastocytosis?

Accepted Answer

Certain meds: Cutaneous masto can be treated with daily oral antihistamines or cromolyn applied to the skin, but sometimes may not need treatment. Systemic masto is usually treated with antihistamines, plus oral cromolyn for GI symptoms and epipen (epinephrine) for anaphylactic episodes. Aggressive forms may only respond to certain chemotherapy agents. See a specialist in masto for more information.

Question 6

what does mastocytosis mean?

Accepted Answer

Too many mast cells: Mastocytosis is an overgrowth of mast cells, immune cells that release histamine and other chemicals upon activation. There are several forms, from small collections of cells in the skin (urticaria pigmentosa) to increased numbers in the bone marrow and throughout the body (systemic mastocytosis). Symptoms vary from hive-like reactions to recurrent anaphylaxis. See a specialist for more details.

Question 7

what exactly is mastocytosis?

Accepted Answer

Too many mast cells: Mastocytosis is an overgrowth of mast cells, immune cells that release histamine and other chemicals upon activation. There are several forms, from small collections of cells in the skin (urticaria pigmentosa) to increased numbers in the bone marrow and throughout the body (systemic mastocytosis). Symptoms vary from hive-like reactions to recurrent anaphylaxis. See a specialist for more details.

Question 8

anyone diagnosed mastocytosis? how?

Accepted Answer

Skin problem: This is a skin disorder.  I recommend asking a dermatologist this question.

Question 9

anyone have mastocytosis? what is it?

Accepted Answer

Skin problem: This is a skin disorder.  I recommend asking a dermatologist this question.

Question 10

anyone have a baby with mastocytosis?

Accepted Answer

Yes: There are no accurate data on the frequency of mastocytosis. Annual incidence of 5-10 new cases per million population is estimated. In dermatological practices and hospital departments of dermatology, 1 of every 1000 to 8000 new patients has mastocytosis. The most frequently encountered forms are cutaneous mastocytosis and indolent systemic mastocytosis. The least common is mast cell leukemia.

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A member asked:

Agg. systemic mastocytosis. this mean my anaphylaxis food/drug allergies will now end since on cromolyn? could itp dx be part of asm or can have both?

A member asked:

How do i find information on mastocytosis?

A member asked:

How do i find information on mastocytosis on a reputible site?

A member asked:

Does mastocytosis go away?

A member asked:

How to control mastocytosis?

A member asked:

What does mastocytosis mean?

A member asked:

What exactly is mastocytosis?

A member asked:

Anyone diagnosed mastocytosis? how?

A member asked:

Anyone have mastocytosis? what is it?

A member asked:

Anyone have a baby with mastocytosis?

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