Question 1

has anyone heard of ehlers danlos syndrome causes?

Accepted Answer

Genetics: Ehlers-danlos is a genetic condition. There are no other known causes.

Question 2

are subcutaneous spheroids caused by ehlers-danlos most associated with the classical subtype? or would they also occur with other subtypes?

Accepted Answer

They are Minor Crite: Most common with Classical EDS. Not very common in general

Question 3

would ehlers-danlos syndrome cause an elevated ana? titre 1:640.

Accepted Answer

NOT: generally..... this syndrome is inherited whereas a elevated ANA indicates an ACQUIRED rheumatic disorder and a complete rheumatological  evaluation is indicated!

Hope this is helpful
Dr Z

Question 4

am hyporeflexic in my upper and lower extremities. can ehlers danlos be of cause to this or should i investigate this further?

Accepted Answer

: I do not think hyporeflexia is a feature of EDS. Take care.

Question 5

due to the effects ehlers-danlos syndrome can have on someone's skin, can that affect the sensitivity of penile skin as well? i have been dealing with an unusual and distracting amount of sexual thoughts and thought this might be a cause?

Accepted Answer

: I wouldn't attribute your thought obsessions' to EDS. This is a connective tissue disorder where some of the underlying tissues are not bound as strongly to other layers. There is a tendency toward looser skin, but the syndrome does not affect how your brain works.

Question 6

having been diagnosed with ehlers danlos just recently, (myself, my 2 disabled sons, and my mother), i am still trying to learn about it and understand the depth of its impact on my family and all of our  symptoms/conditions.  is it possible that it cause

Accepted Answer

Can cause a lot: A wonderful site for information is the EDNF.  Specifically you can review all of the information presented at the last annual conference at this site. 
http://www.ednf.org/2014-annual-conference
After you have had a chance to become acquainted with this, please return and ask all the questions you can think of.  EDS is a very complex condition with a wide range of challenges.

Question 7

does ehlers danlos hypermobility and pots and gerd caused by eds have flare ups? better for a while then worse for a while?

Accepted Answer

Explain abbreviation: Explain pots abbreviation?  Gerd can certainly have flareups.  Ehlers danlos has a myiad of symptoms.  Hypermobility-related flares are typically activity-related.

Question 8

can ehlers danlos syndrome cause hand numbness and tingling?

Accepted Answer

Ehler danlos syndrom: Yes you can have numbness and pain of the hands because of hyperextention and frequent subluxations of your fingers.

Question 9

i have pseudotumour cerebri diagnosed by lp, mri & opthalmology. moved country & they want to repeat lp. i also have ehlers danlos & arachnoiditis. lps cause leaks & arachnoiditis. can i refuse repeat lp. is it my right to refuse this test / treat?

Accepted Answer

: Certainly, you have the right to decline any medical tests or treatments.  LP's offer the most convenient approach to measure intracranial pressure and assess the outcome of therapeutic approaches.  Yet, post spinal tap headaches could occur, especially with connective tissue disease.  Perhaps, best approach would be to do under fluoroscopy?  Discuss all of this with your doctor.

Question 10

does ehlers danlos increase the risk of heart attack caused by vessels and such in the heart collapsing and not letting enough blood through?

Accepted Answer

No: Glad to reassure you. It just doesn't. Even Ehlers-Danlos IV, in which the arteries end up very fragile and prone to intractable hemorrhaging, doesn't do this. It just doesn't happen.

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Doctor answers about:

Cause of ehler

A member asked:

Has anyone heard of ehlers danlos syndrome causes?

A member asked:

Are subcutaneous spheroids caused by ehlers-danlos most associated with the classical subtype? or would they also occur with other subtypes?

A member asked:

Would ehlers-danlos syndrome cause an elevated ana? titre 1:640.

A member asked:

Am hyporeflexic in my upper and lower extremities. can ehlers danlos be of cause to this or should i investigate this further?

A member asked:

Due to the effects ehlers-danlos syndrome can have on someone's skin, can that affect the sensitivity of penile skin as well? i have been dealing with an unusual and distracting amount of sexual thoughts and thought this might be a cause?

A member asked:

Having been diagnosed with ehlers danlos just recently, (myself, my 2 disabled sons, and my mother), i am still trying to learn about it and understand the depth of its impact on my family and all of our symptoms/conditions. is it possible that it cause

A member asked:

Does ehlers danlos hypermobility and pots and gerd caused by eds have flare ups? better for a while then worse for a while?

A member asked:

Can ehlers danlos syndrome cause hand numbness and tingling?

A member asked:

I have pseudotumour cerebri diagnosed by lp, mri & opthalmology. moved country & they want to repeat lp. i also have ehlers danlos & arachnoiditis. lps cause leaks & arachnoiditis. can i refuse repeat lp. is it my right to refuse this test / treat?

A member asked:

Does ehlers danlos increase the risk of heart attack caused by vessels and such in the heart collapsing and not letting enough blood through?

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